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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have A Significant Other That Questions The Authenticity Of Their Epilepsy And The Side Effects Of The Medicine They Take?

A MyEpilepsyTeam Member asked a question 💭
Newberry Crater
June 1
•
View reactions
A MyEpilepsyTeam Member

These are examples of gaslighting. Manipulation is wrong.
Accusing you of making up your diagnosis and pretty clearly saying they don't like your medicated behavior??? You're not getting the respect and your support you deserve Jp4.
Perhaps you should invite them along next time you see your neurologist.

June 1
A MyEpilepsyTeam Member

Tell anyone who thinks this crazy old time way to get real. Bout 50yrs ago my 60 year old very Italian Mom told any saying sad to be on meds " Shut up you don't know what you're talking bout be glad she has them to help!" I wouldn't react as angry at age 17 simply explained epilepsy to any to correct them. If had small seizure at bus stop while talking to others sat down waited till could speak told them was due to my epilepsy reactions "Wow that was a seizure?" thought all were much worse was why. Many seizures in public people tell me of their own or a loved one's it really is quite common.

June 2 (edited)
A MyEpilepsyTeam Member

It sounds like you've been able to turn your seizures into an educational experience for others. So a positive comes from a negative in this case.

June 2
A MyEpilepsyTeam Member

Marilee Thanks for more poitive reaction Some get insulted, say not sympathetic by my positive posts. Back in 1972 my diagnosis was a relief explained it all. Depression never even mentioned puzzled 20 years when read of link. Mom told of geniuses Einstein, Michelangelo, Nobel, Socrates, Poe etc who had seizures Was amazed no one knew why till 1920s.no meds till 1940s Happy we had any.meds for epilepsy. Once I knew why no seizure scared me frequent drop down tongue biting one but always fine after. Broght side of epilepsy needs to be seen too.

June 3
A MyEpilepsyTeam Member

It's dif per person, no. I tell people who I come into my life at my own discretion, my wife and family are aware of my condition I have, my opinion

June 1

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