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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hypothetical Question, Below,

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

I was wondering if you could say get your doc from your diagnosis you have now and got them all together to discuss your condition and progress with the other docs for 2 hrs session would you do it?

June 21
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A MyEpilepsyTeam Member

I think I would, just to see what is being talked about and my condition and hear what they say about the treatment and medication and the test and everything else that they may bring up during the discussion at the table, I would be more than willing to give my input to any questions that they have to ask about, and also any questions I have to ask about also, what comes to mind I'd say, but I think it would be interesting my opinion here, kinda a before and after discussing and looking at the medical field etc and how it's progressing let's say, no arguments about it, but people's opinions and input from their viewpoints and such, I wouldn't mind, my opinion

June 21
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A MyEpilepsyTeam Member

I don't think I would because the police might be needed. My diagnosing/referring doctor is super rude. My next doctor is also my current neurologist again after an 8 almost 9 year gap, and he isn't happy I didn't have a single blood work test, Eeg, or anything but the usual walking tests and med adjustments for 8 years. He also already dislikes my super rude past regular doctor. I mean really rude. She kept interrupting me describing a seizure in the ER to her (she was in ER duty that day as well as my GP) with her voice getting louder and louder. She triggered another seizure, and I fell off the hospital exam bed backward. Proved I wasn't faking at least, and that's how I got officially diagnosed with Epilepsy, btw.

June 28
A MyEpilepsyTeam Member

Well actually this was something that was done for my case, there just so happened that there was a board meeting that included multiple neurologists and epileptologists from different hospitals. My former doctor and my current doctor were both there. My current doctor has a different evaluation and concerns than my former doctor especially with my scans. The board was able to make a decision with my current doctor about what else they can do for me. It would have been very interesting if I was there to listen to the meeting

June 22
A MyEpilepsyTeam Member

Only if I got to pick the doctors. Cause the ones I don't want there were trying to do me harm.

June 25
A MyEpilepsyTeam Member

I’m learning so much from this team then the doctor. My doctor just retired! The medication I’m on I have seizures around when stressed once a month 😒 . Didn’t know seizures changed every 20 years and other symptoms . This will be the first time for myself to learn more about me instead of taking a friend.

June 22

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