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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do Others Experience This Syndrome?

A MyEpilepsyTeam Member asked a question 💭
San Diego/HillCrest, CA

I have a question. I had another grand maul seizure (a generalized tonic-clonic seizure (GTCS) recently at home. I remember heading to the kitchen . The next thing I remember was being on my tile floor. I ALWAYS wear a watch. I have noticed that the way I collapse my left arm is often under my back and I am too exhausted to move. Does anyone experience this? I wasn’t hurt, just a minor bruise on my left hip. I am too tired to move without help. I live alone and my phones were in my home office… read more

June 22
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A MyEpilepsyTeam Member

It's dif per person, and I have had plenty of seizures since I was diagnosed with my condition of epilepsy, I think that has happened to me a few times like you described here, I am aware of some of them happening but go through and be ok, there has been times I have gone through a seizure and was told I had it three days after it happened, I think that my current condition is more stable than before and I am ok with that and so is my doc, but not complaining about it, i the medical field etc are doing ok and I think have made some progress with In my opinion, no cure for yet but an improvement over the years I think, so hang in there and try and stay pos as best you can, I and everyone else here is going through their own conditions and such etc, so try to keep a good mind set, my opinion here

June 22
A MyEpilepsyTeam Member

I recently added a smartwatch and installed a similar software application. I have a general problem with the way the watch was set up that requires resolution. I think the smartwatch software is a great option. The person who sold me the watch at T-Mobile has seizures and uses an application. To notify others you are having a seizure.

June 25
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have focal seizures that affect my right side. Depending on how bad it is I’m definitely confused for about sometimes up to two hours.

June 22
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A MyEpilepsyTeam Member

I too have tonic clonic seizures and I have found that after them I have temporary amnesia and I'm disoriented, exhausted and all of my muscles are so sore thT it takes me days to move

June 26
A MyEpilepsyTeam Member

I read about a company "Embrace" that makes a watch that will alarm someone else to come to your aid. When your'e having a seizure.

June 25

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