Hi All, Hope Everyone Is Doing Well. Can Someone With Seizure Devices Give Me Feedback. I'd Like Info On Various Kinds. Tyia
I'll be seeing an Epileptologist soon and I'm confident this will be their recommendation. My seizures are becoming drug resistant again and surgery isn't an option.
I π€·ββοΈ truly see π that there is alot to learn about different things about seizures and what can be done because I don't know nothing about these things the VNS or DBS and my Doctor π¨ββοΈnever said anything either π€·ββοΈ I feel lost on information about epilepsy seizures, because this is a serious illness π₯΅that's totally not understandable at least for me π and I'm trying to learn more about it π€·ββοΈ it's like wow π€·ββοΈ so much to learn I'm praying π constantly uhmm π€·ββοΈ π€
I had the VNS has power box ( stimulator ) . The power box is place behind the skin next to the left chest . Lead wires go from the device guided up the the side of the neck to the Vagus Nerve below the brain. The VNS sends an electric pulse pulse through the Vagus nerve into the brain to help reduce the seizures.
The DBS was FDA approved for Epilepsy in the United States of 2018 .
The DBS is much Similar to the VNS , due to the lead wires and and stimulator
( power box ) . It also sends the electric pulse to the brain too. The main difference is where the wires are inserted , which is into the top of the brain going deep inside the brain.
@A MyEpilepsyTeam Member
I used to have a VNS but now I have a Neurostimulator (RNS). I think the RNS helps but I still have seizures.
I'm doing that also. Just wanted some first hand knowledge. Ty
I had gotten two devices after the brain surgery in 1995. The Vagus Nerve Stimulator took place in 2008 then the Deep Brain Stimulator for my Epilepsy took place in 2011. I have been drug resistant all my life so I totally understand what you are experiencing. I'm happy to try and answer questions but also suggest to be your own advocate and research these items like you are doing now.
When I spoke with others about the VNS before having the surgery it was a game changer as I could gain opinion about it.
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