In my own type there is no one starting point as an EEG while having a seizure shows. No MRI has shown anything either. Its all from the brain's electrical sys having too mich then just shorting out so a seizure occurs. Why is unknown same sys as our thoughts come from also too complex to explain. But at least we know epilepsy is not a mental illness finally.

I agree now. I was 22 at the time and didn’t know any better

My Epileptologist does know where my Seizures are located . Ive had clinical EEGs and inpatient EEGs , in the Seizure Units, at the hospital . There wasn’t any choice for me to not reduce my medication a little every day.

There were always medical staff on alert in my unit. I was also watched thru a video camera throughout the whole Unit . So if If left my room to visit other patients in the leisure room , they can watch me there also . When my seizures start showing their head the staff know what procedures to do , during the seizure ( no matter how big or sever it is.

In fact, the seizure unit alway wants their patients to have a big seizure . The bigger the seizure, that easy to figure out where they are located .

In your case @A MyEpilepsyTeam Member ( My opinion ) , you shouldn’t of been able to choose , on whether or not they reduce your meds. They should of warned you about the medication reduction. Like I said above, the bigger the seizure,, the better answer, they will be. It will help them, figuring out where your seizures are located

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A MyEpile...

I had the deep route EEG, and that is when they decided that I was able to have the surgery after changing doctors and him looking at the outcomes. I am now almost 10 years post-surgery. I am doing things that were said to be impossible. I am going on for my Masters degree. I had part of the left-temporal lobe removed.

@A MyEpilepsyTeam Member , Most of my seizures are active in my Left Temporal Lobe . But there are a couple of other areas I have Focal impairment awareness ( complex Partial ) seizures.. I am unaware when my seizures happen.

My seizures last between 20 to 60 seconds. That how short they are. I don’t think the EEG was able to get enough Data for that short of a seizure. At least not until I had that large Convulsion. It lasted 2 + minutes. It was what they were looking for.

Well this is what I understood from my Dr.

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A MyEpile...