I agree now. I was 22 at the time and didn’t know any better

My Epileptologist does know where my Seizures are located . Ive had clinical EEGs and inpatient EEGs , in the Seizure Units, at the hospital . There wasn’t any choice for me to not reduce my medication a little every day.

There were always medical staff on alert in my unit. I was also watched thru a video camera throughout the whole Unit . So if If left my room to visit other patients in the leisure room , they can watch me there also . When my seizures start showing their head the staff know what procedures to do , during the seizure ( no matter how big or sever it is.

In fact, the seizure unit alway wants their patients to have a big seizure . The bigger the seizure, that easy to figure out where they are located .

In your case @A MyEpilepsyTeam Member ( My opinion ) , you shouldn’t of been able to choose , on whether or not they reduce your meds. They should of warned you about the medication reduction. Like I said above, the bigger the seizure,, the better answer, they will be. It will help them, figuring out where your seizures are located

I had the deep route EEG, and that is when they decided that I was able to have the surgery after changing doctors and him looking at the outcomes. I am now almost 10 years post-surgery. I am doing things that were said to be impossible. I am going on for my Masters degree. I had part of the left-temporal lobe removed.

@A MyEpilepsyTeam Member , Most of my seizures are active in my Left Temporal Lobe . But there are a couple of other areas I have Focal impairment awareness ( complex Partial ) seizures.. I am unaware when my seizures happen.

My seizures last between 20 to 60 seconds. That how short they are. I don’t think the EEG was able to get enough Data for that short of a seizure. At least not until I had that large Convulsion. It lasted 2 + minutes. It was what they were looking for.

Well this is what I understood from my Dr.

@A MyEpilepsyTeam Member This seems to happen a lot. I'm not too sure whether its a us health care thing or they just get a lot of cases where they don't know what's going on and they need a way to trigger a event to find out, and this is the only way.

But in saying all that I'm not sure why they wouldn't use eeg tech that can pick up the seizures without the need for patients to have a major event.