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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Epidolex. Is Anyone Else On This? Or Was On This?? And If You Stopped Taking It What Did You Replace It With?

A MyEpilepsyTeam Member asked a question 💭
Northport, NY

I’m having some side effects that I have discussed with my doctor. Gastrointestinal issues and they subsided for a while but as soon as I increased the dose they started again. Thanks for any advice.

July 19
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A MyEpilepsyTeam Member

Never Had Or Heard Of Epidolex

July 19
A MyEpilepsyTeam Member

I tried but my insurance would not allow me. They don’t think my condition is sever enough

July 19 (edited)
A MyEpilepsyTeam Member

You should call your dr.

July 20
A MyEpilepsyTeam Member

Darn. Your very limmited then.

July 20
A MyEpilepsyTeam Member

I’m in NY. I don’t take anything that’s not prescribed by my doctor.

July 20

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