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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Preparing For College. Anyone Find Roadblocks When Trying To Implement Safety/care And SAP Plans?

A MyEpilepsyTeam Member asked a question 💭
Indianola, IA

The college appeared all on board for anything my son would require to safely live on campus. Now that school is about to start,we are getting the actual pushback which is we can only offer the basic Stay/Safe/side type help but NOt administer Emergency Seizure medicine as they dont want the school or a roommate to be liable. They would call campus security and then campus security would call the local EMT which would be too slow to render real help. Im wondering about others in this situation… read more

August 12
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A MyEpilepsyTeam Member

I have not had to experience that side of the college journey. It was the challenge of having them realize that I could do school post-surgery. Have you tried reaching out to the local epilepsy foundation near the school? They usually come in and teach the schools, which prepares them for us. My new school is having this happen this fall. This August is ten years seizure-free with my surgery, but I still have challenges, and I am breaking expectations! Never give up!

August 12
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A MyEpilepsyTeam Member

I hate to say that times have changed, but many communities have not all caught up. Many are still scared of us. This is a slow process this is not easy we have to be our biggest advocates and make the changes.

August 19
A MyEpilepsyTeam Member

No, I am not a teacher; I am going on for my Master's degree to become a counselor. I am doing things that doctors said would never be possible. I had surgery and I have floored the doctors ever since. There is a video of my interview with ABC News on You Tube- pennstatehealthbrainstorm2022-03-23

https://www.youtube.com/watch?v=hKk9g3Ppg3g&amp...

August 13
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member,

First of all, I would like to tell you congratulations and I’m proud of you for going to college. If you’re finding issues with Safety care plan while being at college, you can go to the www.epilepsy.com website.

They have forms that you can fill out to help you with these.
You can also recommend to your teachers to go to the www.epilepsy.com website to sign up for free, to be seizure certified.

The classes are free for being seizure certified, and it doesn’t take very long. It’s something you can also share with others your friends and family.

As always, this is a suggestion. I highly recommend being seizure certified. It helps inform others about epilepsy and how to handle a seizure episode.
I hope this helps. you’re going to do great in college.
I hope you have a seizure every day.

https://www.epilepsy.com
August 13
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , If y’all might be interested in trying to apply for a grant for an Epilepsy Device, The Danny Did Foundation can help. Go to www.dannydid.org & click on the box in the top right corner & then click where it says “Epilepsy Devices” & then scroll down a little & you’ll see where it says something about applying for a grant for one of the Epilepsy Devices that you’ll see listed as you scroll down a little further, but read carefully because the grant can only be used on certain devices. Good luck to your son. Your friend in Texas, Becky

Advancing Awareness of Epilepsy & SUDEP - The Danny Did Foundation
Advancing Awareness of Epilepsy & SUDEP - The Danny Did Foundation
August 12

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