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It's A Sad Question To Even Think About For A New Community As I Head To School...

A MyEpilepsyTeam Member asked a question 💭
Chambersburg, PA

When I go to new churches, is there some trick to mentioning or hiding the epilepsy? Though I am ten years seizure-free, this has been part of my story, and if I am honest, this is who I am. How long do I wait till this comes out? I hate that this even needs to be asked, but this has come up visiting a former teacher and has left me nervous as I head north for my Master's degree in an all-new church area. I remember that even my brain surgeon stopped visiting churches because they found out what… read more

August 15
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A MyEpilepsyTeam Member

Why would you want to hide who you are? 🤨If anyone were to ask me who I am I'm going to politely give them an answer and should they not like the answer that's okay as each of us are unique in our own way. I was in a meeting today with someone and we had a lovely conversation about this exact subject. How she explained, there are persons we just click with then there are others we don't, it's called life. I thought it was the best way of saying something.

August 15
A MyEpilepsyTeam Member

Thanks, everyone, for your help. I had just visited a former teacher, and his congregation acted like I was going to infect them or something. They all hid in the back of the building, and no one would shake my hand after I told the first couple. I was just scared to experience this again. It was sad to see that community behave that way. It made me more heartbreaking to think if one of their members had a head injury and started having seizures, would they ever accept them? That is my caring side.

August 15
A MyEpilepsyTeam Member

I was always going to church or functions of the church since I was child. I sing in choir. Help I Bible study. I tell people that I have seizure disorder but always ready to help. I noticed I really have support. I have been a deacon 4 times and Sunday School teacher. My husband believe it is where we pray , sing and give gratitude for our blessings. Our last church in MD was fun ! One of the Dr. that worked at UCLA, was fun to realize we were both in MD. Our children were born 1st at Santa Monica Hospital and our 2nd at Georgetown in Washington DC. I found inspiration and satisfaction going to church! It is your own decision but it’s a supportive community for me and my husband!

August 15
A MyEpilepsyTeam Member

I let my church know just in case of emergency

August 15
A MyEpilepsyTeam Member

I myself I let people know up front and if they can't except it I know who to stay away from and the ones who do except me I will explain what they can do if I have a seizure when I might be around them

August 15

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