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There's Still A Lack Of Awareness. Stigmas. As Well As General Discrimination With Seizures. I'd Like To Know More About Cluster Seizures.

A MyEpilepsyTeam Member asked a question 💭
Sisters, OR

I have lost jobs so to having a seizure just because they didn't want to deal with it. I was seizure free 10 years and it ended my job and my firefighting careers both. Has anyone lost do to seizures because of misinformation or people having basically called you crazy?

August 16
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A MyEpilepsyTeam Member

Cluster seizures are basically when you have more than one seizure in the space of 1 hr. Or another example is you may have multiple seizures over the course of the day this is also cluster seizures.

August 17
A MyEpilepsyTeam Member

I’ve had many different times, where I had Cluster Seizures. They are basically seizures that may follow a seizure you may of recently had moments before . They can continue many times through the day. They can be exhausting too, depending on how strong they are , how many times in that day and how long they may last.

My early years with my Epileptologist , he prescribed me with a liquid Lorazepam
( generic Ativan ) , for Seizures Recovery . I only take it as needed. So when my clusters act up , I would take the Lorazepam to slow down to stopping my seizures.

If you have cluster seizures, you may want to talk to your Dr. , about Seizure Recovery Medications.

There are other brands of Seizure Recovery Medications .

August 17
A MyEpilepsyTeam Member

Most of my seizures have been clusters. Even the doctors seem surprised. I had them when my wife and I were at Duke University neurology and they told her it was unusual. I seem to be ok the next day but it takes a tremendous toll on my body.

September 4
A MyEpilepsyTeam Member

It's dif per person, I had a couple times that happened to me, it's i would not be something you would expect but did unfortunately took place, I didn't want to to the end of it to be the end result of and maybe kinda find a way to work out, but didn't go that way, I just left a few jobs or they let me go for what was their thinking, but was unfortunate and didn't want to go down but did, I look back and it was not what I wanted to happen but I then think it was for my benefit, don't need to work in that kind of place where they can't come to a middle ground and agreement, my opinion here

August 17
A MyEpilepsyTeam Member

I don't think I ever had cluster seizures, only know what others have said about them. I did have to give up working, doctors orders, there was little understanding of seizure in the 1980's.

September 4

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