@A MyEpilepsyTeam Member , There are unfortunate people out there who have passed away due to having a seizure. Do your research. Go to www.dannydid.org and you’ll learn more about SUDEP and the little boy Danny who passed away from it. Don’t tell me not many pass away from it because the research can tell you different. Don’t compare Epilepsy to another disease because each disease is different. People can unfortunately pass away from seizures for different reasons. I know someone who fell & hit their head & began having seizures & months later passed away. You might be able to get up & brush off your seizures but not everyone can & they might have more severe seizures. Not everyone is like you. Everyone is different.

Mentioned Users

A MyEpile...

Advancing Awareness of Epilepsy & SUDEP - The Danny Did Foundation

https://www.dannydid.org

@A MyEpilepsyTeam Member Went through many tests to find the right option because I was having complex partials but in the end we first went with Vagus Nerve Stimulator in 2008 then the Deep Brain Stimulator in 2011. The seizures changed from complex partial to absence after the DBS settings. There are times when I will be seizure free for an entire month which is quite wonderful in my opinion. I am on a low dosage of medication at this time which is just fine. I am quite happy with how the VNS and DBS work together to manage everything.

Mentioned Users

A MyEpile...

@A MyEpilepsyTeam Member. No, this was not her first seizure. She was having them most of her life. My wife, Julie, was born with a tumor at the base of her brain. It wasn't discovered until she was two years old. The doctors could not remove it surgically, so she went through six weeks of radiation treatment. I think the seizures were caused by scarred tissue from the radiation. The radiation treatment also caused her to slowly lose her hearing.
After the treatment, the doctors told her parents to enjoy her while they can because they didn't expect Julie to make past the age of four. She made it to 52.

If you are interested in how we met or anything else about Julie, please let me know.

Bill

Mentioned Users

A MyEpile...

Thanks to every one on this site. The support is awesome which we all need.
My hope is….remove the carvenoma and I’m cured
I should have saved my wish on Christmas when all I wanted was my 2 front teeth

I go to Hosp. of U Penn for all docs there which are 3 different specialist and primary my primary doc. Also had five surgeries done, 3 for epilepsy, all were successful I trust a doc. at a hosp. way before other place. I know my docs. actually attempt to help. save money and get the best treatment done. Why would they care financially how much going to cost since they get paid on set paycheck. Doesn't benefit them seeing more or less patients. They will want to give great treatment because it may possibly promoted giving good treatment demotted or fired if give bad treatment.