Do You Think You Are Falling Victim To Psychogenic Non-epileptic Seizures (PNES) & Not Epilepsy? My Family Thinks So.
It's understandable to feel confused or concerned if your family suspects you may be experiencing psychogenic non-epileptic seizures (PNES) instead of epilepsy. PNES can closely resemble epileptic seizures, so it is often initially misdiagnosed. Getting an accurate diagnosis is important. To help determine if you have PNES Show Full Answer
I finally have a new doctor and epilepsy clinic that I will be going to in November and I am going to write down my thoughts and bring it up with him. My previous doctors who removed 98% of the 3 neuroepithelial cysts from my right front temporal lobe wanted to remove my entire right temporal lobe to stop the seizures. I refused and I was refused to be followed by their clinic and they dropped me in late 2018.
I think sometimes that I suffer from it. My doctor does not. I am going to believe in my doctor. BUT, I will say that when I read the information and the symptoms, mine sound the same. Normal MRIs, Normal EEGs, it begins to make a person wonder. I would say if your doctor says no, the go with their diagnosis. It is stressful enough, get an appointment with your doctor.
I agree with you and your post here, and the epilepsy team post too, but hang in there and try and stay pos,
My family has gone through lessons on Epilepsy first aid. They don't care if it's real or PNES. You have a seizure, they respond. Very accepting. You want to share them? I have more than enough of them to go around. I literally have a cousin in all 50 states (2nd cousins are still cousins in my family), and when news went out that I was diagnosed, they all did their homework. More than 50 people added to our list of allies. Seriously...anyone want a cousin? Christmas is coming...
Can You Have Tonic Clonic Seizures With Your Eyes Closed
Non Epilepsy
Yes