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VNS And RNS? I Have A VNS And My Neurologist Asked Me To Look Into RNS...so Ive Come Here. Ive Never Heard Of Anyone Having Both...?

A MyEpilepsyTeam Member asked a question 💭
Buffalo, NY
November 4
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A MyEpilepsyTeam Member

Interesting.

2 days ago
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I had so many EEG’s, including a surgery, where I had no seizures so doctors didn’t get any information. That’s one thing nice about the Neurostimulator (RNS). Not only does the RNS help reduce seizures but it also records my seizure activity 24/7. Whenever I have a seizure or aura my mom will get a magnet and touch my head to mark the spot of the seizure. Before I go to bed every night I turn on the RNS monitor 💻 and place a wand on my head. It will take a minute or two for the RNS to download all of my seizure activity for the day. When it’s finished downloading I hit “Send” and all of the information is sent to my doctors. When I go see my neurologist and the RNS team they get out their monitor and can see everywhere I had a seizure and everywhere I marked with the magnet. Most of the lines on the screen are level but when they go to a spot I had a seizure the lines get bouncy
————-wwwwww———-. The doctors write down whatever information. Since I do still some seizures the doctors have risen the amps several times. To do that they just place a wand on my head and do some adjusting on their computer. I never feel any vibrations. Every 6 or 7 years the battery will need replaced. That was just an out patient procedure so it wasn’t bad.

2 days ago
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A MyEpilepsyTeam Member

Do you have any more information about RNS

2 days ago
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A MyEpilepsyTeam Member

I never heard about a RNS I have the VNS implanted in 2012 thanks for the info on the RNS I am going to ask my doctor about it my next appointment

2 days ago
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A MyEpilepsyTeam Member

They are both Implants. Also You don’t hear much about it but there is Deep Brain Stimulation also

November 4
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