Lori, Thank you, Yes This year especially has been very difficult after loosing my FT job I had. back in February then have a look like in four different areas from where I live to find something feasible for myself. What I have now is a little something but not a lot now compared to what I was making every week but I guess a little is better than nothing. Still only working four hours every time I go in and after those four hours still it’s really exhausting. I don’t know why but it just is. Maybe it’s part of because I’ve been out of work for so long or it’s something else I don’t know what the rhyme of reason is It’s probably a combination of both. Hope you had a good weekend and I had yesterday off so it was somewhat of a chill day for me. I’ll see what happens tomorrow when I go in at four anyway I’ll let you know. May drop you a line tomorrow evening once I get home. Feel a little exhausted tonight after only working four hours Normally do after leaving there.

Lori believe me I’m not trying to stress out over this. Just feel trying to get an answer from the correct Dr would be nice. I just feel like it’s being ignored all together. I’m not one to complain unless I feel horrible. It’s gotta take a lot for me to start complaining. But I know when something is going on and need action by a physician. Whether it’s internal or neurological.

@A MyEpilepsyTeam Member so dr is afraid. afraid of messing up. but if the med side effect is something like bone loss (or something like that)(just a guess)... then doing nothing is not good. i am saying a 2nd option won't hurt ya. someone with fresh eyes. not nessasary a young or old dr... but a good dr with lotta experence.

Mentioned Users

A MyEpile...

Bryan, my doctor doesn’t need to tell me what side effects my two cause me cause I already know I’ve read it more than once. I get the feeling he just doesn’t want to do anything.. seems a little on the lazy side of me but with me going through all this I think a different action needs to take place.

Quinn,
This Is YOUR LIFE. If you don’t think your being Heard , Speak Up’. Do this suggestion at the Beginning of the appointment. So you don’t get an excuse before you’re done getting everything out.
If you have to be a pest about it do it. But, Try to Stay Calm. It’s hard to when you have all this emotion, but try. Say something like, “Doctor. I am feeling (say anything )and I don’t think you’re Hearing Me”. Then follow up with all the things you are going through. Give Examples.
And then suggest you think you may (Need or Want) a Wheelchair because of what you. are going through. Then, ask them.what they recommend.
And then repeat what you said about your condition. Hell maybe. You should suggest something medical, “Maybe I should have a MRI to rule things out”? Tell them how frustrated You are. Do Let Them Speak in between. Try to have a conversation.
It’s not going to be easy. But try it if you want.
Look , I’m not telling you what to do. I just have read your story and your questions. And this is just another suggestion I came up with. I Really Feel for You. 🤗 ❤️.