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My Son Had A Few Seizures Maybe 4 Only Around 5 Years Ago And Now He Is 15 And Has A Seizure Each Month Always In The Morning

A MyEpilepsyTeam Member asked a question 💭
Reading, UK

Also the last few seizures happen in the car as soon as we step out of the house ready to go to school. Neurologist is not sure if this is a non epilitec seizure and needs videos.

December 7, 2024
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A MyEpilepsyTeam Member

Did the Dr know about the injuries you suffered before you was 2?. We ah e had MRI twice and EEG which seems all fine

December 15, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Yes, my neurologist knew about both tragedies. I was life flighted in a helicopter to that same hospital after both tragedies so they were in my records. My mom has told me that the doctors warned her that I could start having seizures after my head injury.

December 15, 2024
A MyEpilepsyTeam Member

Thank you Jeffery, unfortunately as I learn more about Neuorology it’s such deep topic that even Drs with best endeavours cannot pinpoint the cause and hope medication works

December 15, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
The cause of his seizures could be something that happened years ago. I suffered birth asphyxiation and a traumatic head injury before I was 2. I had no seizures until I was 10 years old. Now I’ve had uncontrollable seizures for over 30 years.

December 14, 2024
A MyEpilepsyTeam Member

What the doc recommends sounds like a good idea. I came down with epilepsy when I was 15 yrs. old and had to be taught from home most of my freshman year of high school. Not only because I had brain surgery but also because this sudden irregular change in my life embarrassed me, and I was severely depressed.I was able to get enough of it under control and accept going to school and possibly having a seizure. I remained both for years but did learn to "accept having to take the chance having one in public" to have a life. What helped me accept them both and got both under complete control was seeing a psychiatrist for approximately 5 yrs. Also for your kid in high school since he has a disorder that affects his memory you may be able to get a slight change in his teaching. As for me I did go to class same as everyone else but when it got to testing I got untimed testing. I didn't have the full test done by end of the class, if I needed extra time I was given it. Also for safety in school if he has to walk up and down steps, which may be dangerous, if the school has a faculty elevator your kid may be able to get a key for it so he does not have to take the risk walking. Also, as I did, I had 2 other students that rode the elevator with me In case I had a seizure while on the elevator 1 would stay with me during the seizure while other went for help. At that time I was having about 3-4 seizures a month. Read my story that may be helpful and surprising coming down with epilepsy can be beneficial in different parts of life. I wish you and the kid best, take care!

December 14, 2024
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