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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Auras

A MyEpilepsyTeam Member asked a question 💭
Southampton, UK

I was wondering if anyone can describe what their aura feels like. I find it so difficult to put into words. When I was on the bus I just got that feeling. That's what I've called it since I was a child, a feeling as I didn't know what it was and I didn't tell anyone. It's like this nauseous feeling with a smell I can't describe but it's not a nice smell. I have this feeling in my whole head almost, twitching in my left arm and leg and i just feel so odd.It's just so bizarre. I still can't… read more

December 18, 2024 (edited)
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A MyEpilepsyTeam Member

I don’t always have a seizure after I have an aura and I don’t have an aura before every seizure so auras are no warning signs for me.

December 19, 2024
A MyEpilepsyTeam Member

Lydia6, "that feeling" is a good way to describe an aura. I call the majority of my auras "a confused feeling". I've had auras where sounds were muffed and far off. Auras for me is a sign a bad seizure is on it's way. years back a neuro told me to take an Ativan(Lorazepam) as soon as I feel an aura. For me it will stop a bad seizure 90% of the time if I take it soon enough. Lydia the best way I would describe an aura is an abnormal feeling or sensation before a seizure. Stay safe and well

December 18, 2024
A MyEpilepsyTeam Member

With me I don’t have them but I can tell u that auras warn u before u go into a sezuire and it’s a few secs before hand so if stood up try and sit down as quickly as u can or u will fall and they r drop seizures, and if sat stay were u r and try and tell someone if u can by shouting
And that will help.

December 21, 2024
A MyEpilepsyTeam Member

From what I have understood of Auras , is that they are a small form of a seizure . They are a warning sign, to let people know that a bigger seizure may come.
Then there is the sensation experiences where the person may taste , smell, or hear something that isn’t there .

December 19, 2024
A MyEpilepsyTeam Member

Lydia, you described it very well, it gives you time to position yourself so you won't be hurt.

December 18, 2024

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