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I Have Memory Loss Due To My Seizures

A MyEpilepsyTeam Member asked a question 💭
Trussville, AL

Who else can advise or help with this. Please…

December 31, 2024
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A MyEpilepsyTeam Member

I used to have the problem of not writing things down. Now I have paper and pen in almost every room and I write it down right away.

January 1
A MyEpilepsyTeam Member

Agree with the answers listed above. It is different for everyone, but I'd wager that close to 100% of us suffer memory loss. I'm finding ways to adapt, necessity is the mother of invention. Sticky notes, a journal, the features on my phone, like recording audio or video... in other words, we do our best to adapt, as irritating and inconvenient as it sometimes is. It doesn't help much for forgetting what a conversation is about right in the middle of the conversation, but it helps us get through our day. Timers on my phone for medication reminders with weekly pill containers help.

Keeping my mind busy helps, exercising it, and even with the forgetfulness, most times I retain something I've learned. The slightest progress can help with the depression a lot of us feel. I'm a musician. I get a real feeling of accomplishment if I can learn a song and remember it in a week, though I find myself still walking out of the bathroom with my zipper unzipped. SMH. It will be frustrating sometimes.

DON"T BEAT YOURSELF UP OVER IT! You are not alone. Don't feel you need to achieve "forgiveness" from anyone. Show up, socially. Play games. I love Wheel of Fortune, Jeopardy and board games like Scrabble. Learn new things, indulge in your hobbies, journal, do things you like, walk... avoid the "woe is me" trap that I fell into for a good while after this all started. Think of some new default responses to memory issues... "I'm sorry, what's your name again?"... "I got sidetracked. What was I just saying?"... "Why did I walk in here?"... "I wrote it down but now I can't find the note." Learning to adapt isn't fun but finding ways to adapt is necessary. Feel free to vent here. I have, over this very subject. We are all different, but we're all so much the same. We're with you, deficits be damned.

January 1
A MyEpilepsyTeam Member

It may not help 100% of our memory issues, but may help some. , It’s been a while , but I use to play memory and cognitive games, to help .

December 31, 2024
A MyEpilepsyTeam Member

Cute, thank you. I love humor mixed with truths. Regarding memory, I suspect my mediocre memory is due in large part to the meds rather than the seizures. I suppose it’s a tradeoff; certainly can’t have the seizures, phew!! But, those meds can impact your memory and cognition, so I need to be gentle with myself when I stumble cognitively. Sometimes the mistakes are funny, like ‘tuna instead of tums’ (love it).

January 3
A MyEpilepsyTeam Member

I agree with you and your post and the other people's posts here, I think it's dif per person, I have it in my own way, but I also think it has a few factors that goes with that, age, condition, meds and such etc, but I hang in there and try and stay pos, so can you, my opinion

January 1

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