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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Experienced A Really Dry Tongue Or Mouth After Taking Zonisamide?

A MyEpilepsyTeam Member asked a question 💭
London, UK

I am quite impressed with this med when it comes to my seizures especially at night however I have noticed my mouth is really really dry yuk! Ive only been taking it for a week so am hoping the dry mouth goes away

February 8
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A MyEpilepsyTeam Member

Be careful with Zonisamide, you will start having more seizures at night because the deep sleep is not happening. They have done studies on us now and the studies confirm this. When I came off mine post-surgery, I had to go back to the dreams I would have had post-high school and catch up on every dream I should have had. This took over a year to quit the crazy dreaming. I am now more then ten years post-surgery and seizure free.

February 8
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A MyEpilepsyTeam Member

Another dry mouth. I Always have a bottle of water with me at home
or out..

February 15
A MyEpilepsyTeam Member

Not sure which medication can cause dry mouth but I have it also. Another thing is that if I am out in the Heat I often sweat 😥 profusely. It is why I almost always have a drink with me. I even have noticed it sometimes when I doing some daily housework

February 12
A MyEpilepsyTeam Member

I was told to use Biotene Toothpast and Mouth Rinse. Other brands make dry mouth products. I also suck on ACT Dry Mouth Lozenges. The medication I take for my Nervous Bladder gives me Dry Mouth. I also need to drink a good deal of water. A side effect of Epidiolex is very loose bowels.

February 8
A MyEpilepsyTeam Member

Yes to the dry mouth

February 15

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