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Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
Yes, during my 40's I had more seizures and they were more intense. Some were so strong that I forgot people's names. I weeks of dizziness. Then once I hit my 50's it stopped. I haven't had a seizure… read more
Does Epilepsy Increase Your Risk Of Dimensia?
Well not being a paid scientist, yes. Hahaha. I have Frontal Lobe Atrophy. Whether that became the cart or the horse before the cart, I don't know. I had both Myoclonus and Nocturnal Epilepsy seizures… read more
What Do You Think?
Can someone tell me if they wake up with a headache and then, feel dazed and somewhat relaxed? Then the headache is gone fairly soon after. Is this a sign of a post-seizure?
I have sleep apnea and epilipsey. The morning from 6-8 is a big seizure time for me some mornings I get up feeling like a 5 year old kid other mornings feel dizzy and lost these are my seizure… read more
How Does Everyone Get Through A Tough Situation They Are Going Through???
Like when people don’t understand what you’re going through. Won’t give you more advice 😢😢😢😭😭😭
I agree, my advice and how I handle it is with my lord and God and pray, I do try and handle some by myself but that is my answer, and don't let others bring you down, they don't understand what you… read more
Does Anyone Take Keppra, Lamotrigine Or Vimpat For Seizures?
Hello Everyone. Past Few Weeks I've Under Alot Of Stress And Had 2 Incidents. I'm Wondering If Meditation Has Helped Anyone?
I feel your situations in life. But unfortunately that is life. We all deal with external stumulai, news, social media, even a bad song on the radio, differently as all of our brains are wired for… read more
Is Anyone Here From India Or Indian
India has a huge population with property and illetracy . Raising awareness and help is really needed in the deep rural and slum areas in the city and everyone deserves a healthy life. I am also fighting with epilepsy. Lost job because of epilepsy is anyone here for a helping hand ✋. Please reach out to me at (Email address can only be seen by MyEpilepsyTeam users)
I'm Akash Dixit, I'm from the capital and I have Epilepsy since 2010.Now I am Spreading awareness about Epilepsy and teaching Seizure First Aid as I'm certified from Epilepsy foundation of America… read more
Concerned About A Floating Lump In My Wifes Head
One time when she is having such sharp pains in her head . She said it feels like that part of the head is going to explode. I rub gently on the lump . And it esses the pain . The next time it is in a different spot. Not sure what it is or what to do about it . Any recommendations?
Sounds like an issue that should be discussed with her neurologist/doctor. An MRI or a CT scan should reveal what the lump is
This could be something serious; particularly if she's having pain
I… read more
Debilitating Constant Fatigue- Does Anyone Suffer From This?
Have had this fatigue for quite a while. I get enough sleep. Had several sleep studies done, and I have positonal sleep apnea and restless leg syndrome. I take 350 mg of Nuvgil every day, which is how I get through the day. Have not had a seizure since 10/11 and my neurologist has lowered my epilepsy meds a bit. But the fatigue has not gotten any better. Anyone experience this? And if so, how have you coped?
Sunosi is another relatively new stimulant that I take in conjunction with the Nuvigil
Has helped a lot.
Cognitive Remediation
My cognition is getting worse and worse with my epilepsy. Has anyone had professional cognitive remediation, and if so, did it help? I'm aware that dementia is linked to long term intractable epilepsy. Trying everything to keep the cognition from getting even worse. Thanks!
I have started with high grade mushroom powders, it seems to be sharpening my mind. Thanks for the info on solfeggio, it on Spotify, even though I can never remember the name Spotify🙃
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