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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 164 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyEpilepsyTeam Member 72 answers

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 168 answers

How Does The Cold Affect Your Epilepsy?

By A MyEpilepsyTeam Member 184 answers
12504 questions

Dave7 Are You AI?

A MyEpilepsyTeam Member asked a question 💭
Eugene, OR

You ask alot of questions that are very helpful for people. Some seem to general. Are you collecting information for a project or book? ✍️

A MyEpilepsyTeam Member

You are welcome and hang in there and try to stay pos, I do and so can you.

September 16

When You Have A Seizure Do Any Of You Get Into A Catatonic State During The Episode?

A MyEpilepsyTeam Member asked a question 💭
Lake Highlands Dallas, Texas

I always get catatonic and have tremors during my seizures. I’ve had tremors during my seizures since childhood. I don’t know if that’s normal or not.

A MyEpilepsyTeam Member

The catatonic state is from a physical prob with brain function in epilepsy. Seizure just interrupts the connection that allows the conscious mind, so we lose our ability to move, speak, or think for… read more

August 29

Do Any Of You Guys Feel Like A Burden After Having A Seizure

A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX

I do over think things so sometimes I feel like I'm a burden on my siblings and my mom and dad because after I have a seizure I need to be with one of them or like be around one of them because my anxiety acts up especially at night They say I'm not a burden, but I still feel like one.

A MyEpilepsyTeam Member

LAS Lost my beloved hubby to cancer at just 47 24 years ago. In just 3 months- quite a trauma for kids to go thru. But after 52 years of epilepsy I'm still fine. My kids know epilepsy will not take… read more

September 3

Does Anyone Experience Odd Triggers...other Than The 'norm'??

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Every now and then yes. It’s like an aura for me and it sometimes brings out the seizures.

August 27

Does Anyone Use Pain Relief Cream Voltarol Etc?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

I had some put on my back to ease pain yesterday at 12pm, then 2 hours later I had a severe seizure causing confusion memory loss + loss of appetite, I wondered if using that cream interaction caused it.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, Thanks for your advice, I know that taking anticonvulsants do have effect on your bones, I have oestarthrititis, Take care 🙏

September 18

Is Anyone Aware Of The: Epilepsy Gangster?

A MyEpilepsyTeam Member asked a question 💭
Alpharetta,Roswell,Cumming, GA
A MyEpilepsyTeam Member

Thanks for writing to me Tim. Glad you did. I had numerous negative comments from others, they caused me to stop watching. But, I'll start again. Your episodes are great. I wish the general… read more

November 1

Have Any Of You Thought About Signing Up For Social Security?

A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX

Cause my doctor said when I was younger.I was qualified for social security.My dad just never signed me up since he thought I would grow out of my seizures

A MyEpilepsyTeam Member

I started receiving 12yrs ago, I was 40. 12yrs later and now I'm on permanent disability for the rest of my life. Or what's left of it. Things might not be the best. But ya gotta just keep fighting… read more

August 29

Where Can I Find Assisted Living In Massachusetts?

A MyEpilepsyTeam Member asked a question 💭
Chelmsford, MA
A MyEpilepsyTeam Member

Aaawwww why you need to do that @A MyEpilepsyTeam Member?

August 23

I Have Had A Lot Of Hugs, How Do I Give Hugs Back?

A MyEpilepsyTeam Member asked a question 💭
Reynoldsburg, OH
A MyEpilepsyTeam Member

You are welcome

August 13

Todd's Paralysis, Anyone?

A MyEpilepsyTeam Member asked a question 💭
Eugene, OR

After waking up fully at 4am from nightly nocturnal seizures I was awake but could not move my left side and upper body from the waste up, including neck. I knew something was wrong, my partner was full asleep. I couldn't wake them fully to get up. 8 am they woke up. I was still awake and not able to move told them what was happening. We tried to stand me up.... and I fell over. Still no use of body waste up. We called the ambulance we all considered I may had broken my neck during a seizure. I… read more

A MyEpilepsyTeam Member

I used to have Left sided paralysis just for a short period of time

August 5
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