Dave7 Are You AI?
You ask alot of questions that are very helpful for people. Some seem to general. Are you collecting information for a project or book? ✍️
You are welcome and hang in there and try to stay pos, I do and so can you.
When You Have A Seizure Do Any Of You Get Into A Catatonic State During The Episode?
I always get catatonic and have tremors during my seizures. I’ve had tremors during my seizures since childhood. I don’t know if that’s normal or not.
The catatonic state is from a physical prob with brain function in epilepsy. Seizure just interrupts the connection that allows the conscious mind, so we lose our ability to move, speak, or think for… read more
Do Any Of You Guys Feel Like A Burden After Having A Seizure
I do over think things so sometimes I feel like I'm a burden on my siblings and my mom and dad because after I have a seizure I need to be with one of them or like be around one of them because my anxiety acts up especially at night They say I'm not a burden, but I still feel like one.
LAS Lost my beloved hubby to cancer at just 47 24 years ago. In just 3 months- quite a trauma for kids to go thru. But after 52 years of epilepsy I'm still fine. My kids know epilepsy will not take… read more
Does Anyone Experience Odd Triggers...other Than The 'norm'??
Every now and then yes. It’s like an aura for me and it sometimes brings out the seizures.
Does Anyone Use Pain Relief Cream Voltarol Etc?
I had some put on my back to ease pain yesterday at 12pm, then 2 hours later I had a severe seizure causing confusion memory loss + loss of appetite, I wondered if using that cream interaction caused it.
@A MyEpilepsyTeam Member, Thanks for your advice, I know that taking anticonvulsants do have effect on your bones, I have oestarthrititis, Take care 🙏
Is Anyone Aware Of The: Epilepsy Gangster?
Thanks for writing to me Tim. Glad you did. I had numerous negative comments from others, they caused me to stop watching. But, I'll start again. Your episodes are great. I wish the general… read more
Have Any Of You Thought About Signing Up For Social Security?
Cause my doctor said when I was younger.I was qualified for social security.My dad just never signed me up since he thought I would grow out of my seizures
I started receiving 12yrs ago, I was 40. 12yrs later and now I'm on permanent disability for the rest of my life. Or what's left of it. Things might not be the best. But ya gotta just keep fighting… read more
Where Can I Find Assisted Living In Massachusetts?
Aaawwww why you need to do that @A MyEpilepsyTeam Member?
I Have Had A Lot Of Hugs, How Do I Give Hugs Back?
You are welcome
Todd's Paralysis, Anyone?
After waking up fully at 4am from nightly nocturnal seizures I was awake but could not move my left side and upper body from the waste up, including neck. I knew something was wrong, my partner was full asleep. I couldn't wake them fully to get up. 8 am they woke up. I was still awake and not able to move told them what was happening. We tried to stand me up.... and I fell over. Still no use of body waste up. We called the ambulance we all considered I may had broken my neck during a seizure. I… read more
I used to have Left sided paralysis just for a short period of time