Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member β€’ 269 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member β€’ 163 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member β€’ 146 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member β€’ 163 answers
12459 questions

Does Anyone Have An Emotional Rage (anger) After A Sleep Seizure?????

A MyEpilepsyTeam Member asked a question πŸ’­
St Louis, MO

Crying all night 😒

A MyEpilepsyTeam Member

Everything going good as it can go, I have no problem being added to your team. In fact am more then happy to be part of a winning dream team!!!

March 4

Meds And Weird Dreams

A MyEpilepsyTeam Member asked a question πŸ’­
Cedar Lake, IN

i have a question... is your side effect of your seizure meds causing you to have odd, weird, or scary dreams. and if so, for how long?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I was on Dilantin 1968 to 2021
On multiple cocktails during that time, but Dilantin was common 95% of it

May 29

A Seizure In A Dream?

A MyEpilepsyTeam Member asked a question πŸ’­
Huntington Beach, CA

I had the oddest dream last night. Dreamed I had a seizure wet myself, ended up in the hospital, everything. My wife said no, no seizure, I was dry and at home, so I know it was a dream. has this ever happened to anyone else.

A MyEpilepsyTeam Member

i have... but it is kinda weird. i go to my warning seizure and somehow gets turn into something/one. for excample.... i had a dream i was using a public restroom somewhere and had a partial. while i… read more

January 31

On 150mg Of Briviact For Grand Mal Seizures In My Sleep. Had Another Seizure And My Neurologist Wants To Add Vimpat 50mg. Anyone On Vimpat?

A MyEpilepsyTeam Member asked a question πŸ’­
Ann Arbor, MI
A MyEpilepsyTeam Member

I didn't find it hard to get used to, maybe people around me did.
It didn't control the seizures.

February 1

Use Of Gabapentin

A MyEpilepsyTeam Member asked a question πŸ’­
Pittsboro, NC

I was given Gabapentin for pain after surgery and I found that it did nothing but make me fall asleep which is why I may have been given the medication - who knows. Anyone out there has experience with Gabapentin as a pain killer??

A MyEpilepsyTeam Member

Supposed to be for pain but I don’t like it!!

March 28
Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >

Do You Have Sleep Issues, What Type And Has Your Dr Given You Anything To Help And If So What Have You Taken?

A MyEpilepsyTeam Member asked a question πŸ’­
Ohio, OH

I sometimes go weeks without a full nights rest, recently I have only been getting 1-2 hrs of sleep at a time and it recently caused me to have a seizure from lack of sleep.

A MyEpilepsyTeam Member

I have recently developed it and am in the middle sleep studies to find an answer for myself as well.
Good luck

February 17

I Do Not Have Auras, But Am Told My Face Looks Different If I Am About To Have A Seizure.

A MyEpilepsyTeam Member asked a question πŸ’­
Stamford, CT

It is now called Partial Awareness Seizures. If I pay attention to Triggers, do not have them on my meds and dosages.

A MyEpilepsyTeam Member

It happens! Be careful, this is why I don't drive swim bicycle cook or use a knife. BLANK OUT NOT GOOD. Write in journal and take journal to MD. Adjustment or adjuctive RX may be necessary. Take care… read more

January 28

Who Gets Told That You Get Fired Because Of Your Epilepsy?

A MyEpilepsyTeam Member asked a question πŸ’­
Newbury, UK

a year ago, I got told from my mother that I was fired from my job that I loved doing. however my boss didn't have the guts to tell me to my face. I was heartbroken and upset. they got rid of me because they didn't want to have responsibly when I had seizures. they knew what they were getting into when they gave me the job. as my boss was firing me, she was telling me that I was great at my job and wishes that she kept me
in the last year, it has been really hard to not go to work every day.… read more

A MyEpilepsyTeam Member

I got fired in February 2024 after passing out at work in October 2023, got told to go home and not to worry because i will still get full pay, the company then was delaying my return to work and… read more

June 13

Does Anyone Have This Problem? Along With Seizures, I Have Been Having Constipation Problems And Digestive Problems.

A MyEpilepsyTeam Member asked a question πŸ’­
MCCORMICK, SC
A MyEpilepsyTeam Member

Thanks.

January 27

Does Anyone Else Struggle With Bad Dreams? I Have TLE And FLE, And I'm Currently On 500mg Of Lamotrigine.

A MyEpilepsyTeam Member asked a question πŸ’­
Pretoria, ZA

For the last month I've had bad dreams almost every night. They're anger fueled, graphic and gore-y. I don't watch horror movies or expose myself to said content. The dreams are very vivid. And my partner has told me that I've been speaking more in my sleep and waking him up by shaking him, even tough I'm completely still asleep. Does anyone else have this? What is happening?!

A MyEpilepsyTeam Member

Yes I do sometimes just the other day I had one kinda tripped me out no offense.🫣

January 23
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in