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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can't Keep A Relationship

A MyEpilepsyTeam Member asked a question 💭
Cork, IE

I'm finding it hard to keep a relationship due to epilepsy I'm afraid to tell them incase they run or get freaked out over it. It's frightening any advice

November 13, 2015
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A MyEpilepsyTeam Member

Hello, I understand where you are coming from, the very first thing that I let people know is my medical issue. Hence it is on my neck with a medical ID. I believe that if somebody is not worth talking to about your medical issues then they are not worth being in your life. honestly a person is going love you and want you regardless of medical issues. If they are true.

November 13, 2015
A MyEpilepsyTeam Member

I think we're so used to meeting mean people that we forget about the good ones who do exist. There's is nothing wrong with having epilepsy, there is something wrong with people. Epilepsy isn't the problem, it never was. Epilepsy is part of who we are but it doesn't define us so screw the people who think otherwise. I'm sorry but I'm proud to be an epileptic and if anyone has a problem with that then I don't give a crap anymore. I love the person who I am and so does everyone else. They may get scared but they stick by me through think and thin.

November 14, 2015
A MyEpilepsyTeam Member

When people see the word epilepsy they usually panic because they have no clue what it is at all. I've told thousands of people have I epilepsy, then I explain to them what it actually is. Many times they find what I have to say so interesting they want to learn even more, because it is something they have never heard before.
I explain it so it is easy to understand and since I keep it simple they aren't confused and never know it is advanced Neuroscience unless I was to them.

February 2, 2016
A MyEpilepsyTeam Member

a real man is going to accept you no matter what it is best you tell him ahead of time though before it happens so he will know what to do

February 2, 2016
A MyEpilepsyTeam Member

I agree Kim. I've told many people about my condition, then explain seizures and epilepsy to them so they can understand it and that is helpful. They are more comfortable after they have some understanding of the condition. Even though I have explained seizures and epilepsy to them when you have seizure in front of them they will still panic some, but at least they will understand what is happening and won't be in a full blown panic like they would be if they had no understand of the condition at all.

November 25, 2015 (edited)

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