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How Do You Relearn To Be Epileptic?

A MyEpilepsyTeam Member asked a question 💭
Griffith, IN

Just two weeks shy of my being 7 years seizure free I had a grand mal. Now I find myself feeling like I'm new to this all over again. I'm 40 but I feel like I'm 12 yrs old again & afraid I'll have a seizure any time any where. I began to think I took medication but almost didn't really have epilepsy. It's been so long since I felt the fear, I don't know what to do with it or how to deal with it any more. Fear in my job is something I never had either. I teach, what if it happens? My worst fear… read more

January 18, 2016 (edited)
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A MyEpilepsyTeam Member

Yep always have faith

February 3, 2016
A MyEpilepsyTeam Member

Thank you to everyone for your advice and encouragement. Since posting my question I have finally spoken with my students honestly about my relapse. I have even received emails from parents at the school telling me they are epileptic too & sharing stories. I've always heard the stats but never realized until now just how close to home it all is. I do feel like I forgot what it means to have epilepsy in those 7 blessed years. Now I am scared but trying not to live in fear but be aware.

I crashed my car driving when I was 18 from a seizure. I'd been taken off meds. Broke both ankles, my leg & my arm. I've had 21 surgeries & live with a lot of daily pain, but my kids are worth it. I live to teach them and have to remember I can't do that if all I think of is being afraid of this sleeping giant.

January 27, 2016
A MyEpilepsyTeam Member

Our life is a testament. It's not all about us. It Is ok to feel. but don't let it get you down. You are an awesome person..As I told a young lady before It could be a way that God tests others for compassion.You lived thru it before you can do it again, You are strong and a worthwhile.person. This could be an opportunity to teach, not only the students but also the staff, On several levels Make the best out it you can. We are none us perfect. Like playing cards for instance we never know the cards we will be dealt so just play the best hand you can. Then let go and let God. Sit back and watch the miracle of life unfold. Even in my pain I look for 3 things a day to be grateful for and find three people to compliment. Every night I thank God for the day I just got to live. If I happen to feel as if I fell short on any aspect.I ask that We do better next time and give it away to Him so He can make the best of it. If God is for us who can stand against us.

January 27, 2016
A MyEpilepsyTeam Member

I went through the same thing two years ago this month. I won't lie and tell you it was easy. It took me a few months to emotionally readjust to it all (mostly the loss of driving and inability to live alone anymore).

The biggest thing I do to make sure I can get through work without problem is ensuring plenty of sleep. I also, for the most part, abstain from any alcohol and definitely none during the work week. I pay very close attention to how I am feeling. I have worked with my doctor to make sure I have options when I am having difficulties getting enough sleep. I also look back to when the seizures were more frequent to remember what triggered them. I used that as a base to guide me in what to avoid.

This hasn't been a perfect science. I still have grand mals in my sleep. I also started having absence seizures during the day at work. Fortunately for me, the absence are only noticed by my boss because she has a daughter with epilepsy.

January 19, 2016
A MyEpilepsyTeam Member

First of all you need to figure out your triggers and what makes you seizure. We all know that taking meds late can do it. But how much stress can you handle before you seizure. Does anxiety effect you. What foods and drinks may have trigger effect on you. What counter drugs aren't good with your seizure meds. Are photosensitive ( sensitive to light ) ? Another thing you may want to do , is figure out whether or not , you have auras. If you notice any strange sensations like, weird smells, hearing things that aren't there, feel tingle sensation in your body and ect. If you notice things like those shortly before you seizure, that could be your aura. Think of it as a warning sign. That would be when you want to find a safe spot to sit . Then you would have a small chance of not getting hurt. You may want to let your Dr. Know too.

January 19, 2016

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