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How Do You Explain That You Are Having Seizure Auras?

A MyEpilepsyTeam Member asked a question 💭
Stillwater, MN

How do you describe to someone what an aura is like?

April 3, 2016
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A MyEpilepsyTeam Member

Hi Jake,

It depends as to where in your brain your seizures take place - my seizures take place in my left temporal lobe. I experience auras. I try to explain them in the simplest terms possible. My epilepsy has manifested in the left temporal lobe of my brain. In the left temporal lobe of your brain, some of your senses are affected, i.e. your sight and hearing. So, you could explain it as a sense of deja vu. It's like the feeling you get just before you pass out, or the feeling you get when you run so fast and so far that your legs want to collapse, but you don't you just stand there.

There are lots of ways you could explain it. I guess, it mainly depends on how you experience it.

April 5, 2016
A MyEpilepsyTeam Member

For wut I know about auras . They are a sensation that you may see, hear, feel , and smell. Your the only one feeling one of these sensations . Anyone near you won't know what your feeling or think that your just crazy. I may not have auras but I do have a best friend who also has epilepsy and when he has auras, he thinks he's hearing heavy metal guitars playing.

I guess to make this short , I would tell them that it's a feeling or sensation I get and it a prewarning sign telling me ( or you for this point ) that I may be going into a seizure.

April 5, 2016
A MyEpilepsyTeam Member

I can't . I don't have auras or prewarning signs. I never know when or where my seizures are going to happen. When my friends and family are around , they alert me when I had one .

April 3, 2016
A MyEpilepsyTeam Member

If you get them, try to take mental note, in the moment and write when you can. Explain to your neurologist about this experience. They can help, better than Google. Nothing good comes of that. I speak with experience.

December 29, 2022
A MyEpilepsyTeam Member

I also have auras just right before I have one of my petite seizures. I'll feel or see myself in a completely different place or room than I actually am in. They are very hard to explain or describe to others and often I have people who think I'm crazy or loony when trying to explain what its like.

April 10, 2016

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