Agreed! Education + decrease in stigma is at the root of it all. I'm not sure how a carnival would accomplish both... but it would be great for the awareness piece. One idea I have would be to link up with schools in the area that will buy into helping you "market" it, perhaps even asking teachers to help with the "what to do to help someone who has a seizure" part. Hospitals also would make for good partners, but my first choice would be schools. Get young minds aware, and the future looks brighter for us all!

Looking at or going to the Comedy view I'd agree and disagree with it.
The reason is that yes different people click with different things with me i'd laugh because I just tell people "i'm a good break dancer".
I find it helps me show people that I am just the same as any other person but with a little extra added

I agree I think the schools needs to be aware of what to do ima parent and my 6 year old grand daughter knows what to to save my life because I quit breathing with mine, and my family won't let me go anywhere by myself but that's ok I've just accepted that they want me safe

I meant to also add in my previous notes that the reason I said about the cameras also is because the gov and DWP think that everything is always ok for epileptics but as u guys all know it isn't in many ways and I won my appeal against the gov and DWP for my PIP because it was done by a proper judge but they have still decided to now appeal against the fact that I won my appeal. I have a folder full of evidence but I don't even think they have even looked at it. In my original meeting with Atos Healthcare they gave me 0 points originally anyway. They obviously think epilepsy is nothing, it's pathetic.

I think some of us will end up having to do something like putting cameras up in our homes and getting the times and dates of our fits through seizure diaries and anything else that gets affected by it and end up using them to go through to make a film out of if someone can so that we don't have to show the private parts of our lives and bodies etc. This sort of thing will be the only way we will be able to prove what having epilepsy is really like. Not even using proper actors for it or having to use ourselves to show actors for them to learn how we really go or something similar.