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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had An Operation For Their Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Croydon, England

Been having attacks recently and dr looking at operating. Any advice?

October 26, 2016
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A MyEpilepsyTeam Member

I had the epilepsy surgery in 1995. A long time ago now. Mine was unsuccessful. At that time I was having uncontrollable seizures on medication. My seizures stopped about 10 years ago. But I
was never sorry I went through that, even as painful as it was. I would do it again given my situation at that time.
Please take care
Ilene

October 26, 2016
A MyEpilepsyTeam Member

I had "epilepsy surgery" at the Mayo Clinic known by many as "brain surgery" for my quite bad seizures. It looks like things are working out

November 2, 2016
A MyEpilepsyTeam Member

I had the VNS implanted in Dec. 1999 and recently had it removed due to it not being effective now. I recently just had the Neuropace RNS stimulator implanted. I'm hoping this will help with my Complex partial seizure control some.

October 31, 2016
A MyEpilepsyTeam Member

Yes I have . I use to have severe seizures when I was younger. Around my early 20's , my Epileptologist told me about the brain surgery and wanted to know if I wanted go for it. At the time I was living with my mom and she was with me at my appt. She was very nervous . I already knew my answer. I wanted to do it.

Today I'm not seizure free , but the frequency of my seizures went from severe to moderate and mild seizures. For me it was worth it.

October 27, 2016
A MyEpilepsyTeam Member

Yes, I have had 3. I am on my 2nd VNS & on 8/9/10 I had my right temporal lobe removed. I am now 5 yrs seizure free.

I have had 11 brain surgeries in my life. 1 for my seizures. 10 for Hydrocephalus. My neurosurgeon has told me the safest type of brain surgery is seizure surgery.

October 26, 2016

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