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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Child

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

I know a lot of you have children with epilepsy which I know you look after well but my comment is this - speaking as an adult with epilepsy sometimes I don't want to be treated as a child. I know our partners and family just want to care but as the saying goes - we can't be wrapped up in cotton wool!

November 23, 2016
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A MyEpilepsyTeam Member

Couldn't agree more SallyC I've let people know I don't need pity or to be wrapped up in cotton wool
I'm to independent to ask for help if I need it I sort it myself

November 26, 2016
A MyEpilepsyTeam Member

I've always been as independent as possible. I don't mind help when needed but I detest pity. I've seen friends had grand mals at my house. No big deal, she was in a easy chair so I kept an eye on her breathing and wiped the saliva off her face. I was at a market once when a infant went into a grand mal. The manager of the market ran by saying she was going to do CPR. I bolted after her yelling NOOOO....!!!

November 23, 2016
A MyEpilepsyTeam Member

Morning Darryl.. as a mom of a 33 yr old daughter who also has disabilities I guess bcuz of her vulnerability I do want her wrapped up in cotton wool..bcuz I can't bear see her injured and I have wayyyy too much even though I try my best. I can understand typical adults not wanting to be babied too. I guess we have to find a happy medium. That is very hard to do when you love someone or are just a very compassionate person and want to help. For myself i know there are boundaries around helping and offering to help and each person is so different. Some will be offended right off and some are surprised and welcome the help. I guess it's up to the person with epilepsy to maybe? Let people know how much help or if they'd like or need help? Especially with friends and family members that they're always around. For the general public I like the response of no thank you for asking though. Let's see what others think.. :)

November 23, 2016 (edited)
A MyEpilepsyTeam Member

So true, my teens even try treating me like a baby at times.. ask my daughter often when she became the mama of the house haha

November 23, 2016

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