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I'm 18 years old and have had Absent seizures since I was 2. The many different medicines I have taken have not worked for me. More bad than good. all the side affects. My Dr. is suggesting a VNS. I'm really on the fence about this as it is life changing forever more. i would like to find people to talk with that has Absent seizures with a VNS that it has help and ones that has a VNS that it hasent help and now has to live withit for the rest of their lives. please help me out with your good or⦠read more
Thank you so much!(:
I was originally diagnosed with Complex Partial Seizures. Since my Brain Surgery, I'm not sure .
I have abscense. Seizures, some seizures will make parts of my body move or jerk, some will make me vocalize, and every so often I may seizure in my sleep. The seizures range from moderate to mild. On average I seizure once a day.
I am thanking the same thing kinda scared because if it does not work I would be stuck with it for the rest of my life
I have a VNS. I still have absent seizures. I'm not sure if it definitely stops them, but when the magnet is used it definitely shortens them.
The downfall is I have it at such a high power that it messes with my breathing when working out and sleeping. I now have to be on a CPAP when I sleep.
But. I did get a tattoo that says "BATTERY OPERATED". So that was fun. π€·π»ββοΈ
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