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A MyEpilepsyTeam Member asked a question πŸ’­
Saltville, VA

I'm 18 years old and have had Absent seizures since I was 2. The many different medicines I have taken have not worked for me. More bad than good. all the side affects. My Dr. is suggesting a VNS. I'm really on the fence about this as it is life changing forever more. i would like to find people to talk with that has Absent seizures with a VNS that it has help and ones that has a VNS that it hasent help and now has to live withit for the rest of their lives. please help me out with your good or… read more

June 8, 2017
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A MyEpilepsyTeam Member

Thank you so much!(:

June 15, 2017
A MyEpilepsyTeam Member

I was originally diagnosed with Complex Partial Seizures. Since my Brain Surgery, I'm not sure .

I have abscense. Seizures, some seizures will make parts of my body move or jerk, some will make me vocalize, and every so often I may seizure in my sleep. The seizures range from moderate to mild. On average I seizure once a day.

June 10, 2017
A MyEpilepsyTeam Member

I am thanking the same thing kinda scared because if it does not work I would be stuck with it for the rest of my life

June 9, 2017
A MyEpilepsyTeam Member

I have a VNS. I still have absent seizures. I'm not sure if it definitely stops them, but when the magnet is used it definitely shortens them.

The downfall is I have it at such a high power that it messes with my breathing when working out and sleeping. I now have to be on a CPAP when I sleep.

But. I did get a tattoo that says "BATTERY OPERATED". So that was fun. πŸ€·πŸ»β€β™‚οΈ

December 21, 2023
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A MyEpilepsyTeam Member

I have had sizzers all my life

June 17, 2018

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