I have been toxic on tegretol. I started seeing shadows on the edge of things then the shadows turned to seeing things double not crossed eyed side by side but one above another and having chills.
I went to my Doctor and he checked my blood level and said that I was toxic on my tegretol. So he cut it back and after a few days everything was OK.

@A MyEpilepsyTeam Member I know all too well about side effects. My body likes side effects. The famous tiredness side effect, I have it. Depakote, we have gotten the tremors down a lot lower. We can't raise the dosage any higher without them getting to were I can't hold a pen. Depakote is assumed to also be responsible for the cause of me developing my ammonia deficiency. My body doesn't like me when it comes to side effects. Lol.
And thank you. God bless you. (:

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A MyEpile...

Dilatin must be a touchy one when it comes to dosage too. So far three of you have had problems with it and there aren't even many people who have responded to this post.

@A MyEpilepsyTeam Member, you should always see a neurologist or some doctor to make sure you keep your levels periodically checked even if you've been seizure free for a long time. I've been seizure free for two years but at one point, I developed an ammonia deficiency and I have to get that checked. Plus they have to make sure my other medication levels don't move out of range (like if it's supposed to be between 32-50 and it's 54.3 or 30) because they sometimes tend to. It's not safe if you go without them checked.

@A MyEpilepsyTeam Member I have my blood tested every six months also. Sometimes more often. That time just happened to be because of the ER not my neurologist. The worst problems that I have had otherwise are the severity of tremors based on the level of my Depakote. I also have developed an ammonia deficiency but we aren't sure if that is because of the medicine or not. One of them may be the cause but not 100% sure. I've been seizure free for 2 years so I can live with the deficiency. I don't want to tamper with my meds to see if it goes away and me have a seizure.

@A MyEpilepsyTeam Member I'm not letting anyone but my neurologist mess with my seizure medicines again. I also make they know what I can't take like I can't take any elixirs because of my medicines so when I went to the ER for my ankle today, I made sure they knew that too before they gave or prescribed me anything.

@A MyEpilepsyTeam Member I'm sorry. I know how sucky it is to deal with it once but twice? I'd make sure they only upped your medicine by a few mg at a time instead of a large dose. Like 5mg instead of 50mg.

@A MyEpilepsyTeam Member That sounds scary. I'm sorry you had to deal with that. I take my medicine at 7am and 7pm. I too have to eat with my medicine, or my stomach cramps and I feel like I'm going to be sick. If I don't eat aside from that the rest of the day then I get a headache and lightheaded. As far as sleeping goes, my medicine makes me one of those people who has to have a nap. It sucks. I don't like side effects. I wish everything would magically level itself out.

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A MyEpile...

A MyEpile...

A MyEpile...

Yes, a few months ago I felt a little off and I called my dr and he said to take an extra pill right then and then come in for lab work. I did and my Keppra level was too high so he lowered my dose.