Genetic Epilepsy And Medication
When it’s a genetic epilepsy (PCDH19) does that mean that I will always take medication my whole life? As I know that most anti-seizures drugs have long term consequences when taking for a long time.
@A MyEpilepsyTeam Member They have to think about both situations all the time. It is easier if you are under control because then you can focus more on managing side effects, but if it's not you have to manage both.
Hey, if you've had the genetic testing and it's been broken down to the phenotype then you pretty much have it sorted med wise - yes, you'll be on meds the rest of your life but you'll be on the right meds at the right dosages with minimum side effects.
Any medication has side effects.
Eating too much avocado has side effects so hey, I personally don't care if none of my organs are salvageable after my demise but I WOULD rather it be a timely than untimely one 😉
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