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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What's Going On?

A MyEpilepsyTeam Member asked a question 💭
Fort Worth, TX

So I'll be trying to fall asleep and when I finally do, my right side will start shaking, I get a headache and wake up..it's weird that I feel all of this. It has even happened at the hospital during a CT scan. The doctor says he saw the pics, called a neurologist, sent the pics to him and said it was nothing. I'm past confused. I go to the doctor at least for my baby girl but I literally don't want to go anymore... I really don't know what to do.

October 13, 2017
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I will try that. Thank you

October 15, 2017
A MyEpilepsyTeam Member

i have at least 5 drs and 3 hospitals. try another dr at your own hospital. most drs have a "free trial" visit.

October 15, 2017
A MyEpilepsyTeam Member

you need a 2nd option. i have many drs from 3 different hospitals. i have complex partials and had seizures every 2-3 hours a day. thanks to my team, now i have 1 night time seizure per day.

October 15, 2017
A MyEpilepsyTeam Member

I’m not a doctor but if it were me, I’d be going to another doctor right away. You need a second opinion and possibly additional testing (EEG, MRI) My seizures affect my entire body but I have heard about ones like what you described. You might have the same problem as me, they don’t know where the seizure starts but I need the meds to control the seizures. Good luck.

October 13, 2017
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I don't know where else to go. No neurologist will take me without insurance.

October 15, 2017

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