Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Dealt With This? Has Any Doctor Had A Patient With All Of This?

A MyEpilepsyTeam Member asked a question 💭
Johannesburg, ZA

Please dear God... Someone help me!

At first it started with excruciating headaches... they think its from a lesion on my brain. I was first seen by a doctor just about these headaches in October 2017 and they are still on going

I am in so much pain that I land up screaming and crying
At times I go blind, my eye feels like its swollen.
Severe memory loss
On many occasions I have become unresponsive like the lights are on but no ones home.. Apparently people have shaken me, pushed me, spoken… read more

January 14, 2018
View reactions
A MyEpilepsyTeam Member

I’ve actually had people ask if I’m having early altheimers or dementia. My epilepticologist says no it’s b/c of all the seizures you’ve had, scar tissue, and surgery. I’ve lost short term but I have long term from childhood through college. I have bits and pieces of the last 21 yrs

January 4, 2019
A MyEpilepsyTeam Member

I have forgotten some of my most important dates in my life, friends, things I have done an hour prior, you name it, and it still cannot remember them

November 26, 2018
A MyEpilepsyTeam Member

Same here. Its painful when my daughter asks if I recall something or my wife tells me a story of something we did a decade ago and i have no clue or recollection. Im only in my mid 20s and feel like I have early Alzheimer's symptoms.

December 8, 2018
A MyEpilepsyTeam Member

I, myself write a daily
diary. I write down;
1. What i eat 4 ea. meal
2. Appointments
3. What i need to get/buy
4. I even keep a page on school paper, when
my medicine is due a
refill.
5. I'm a Gpa, & i have to
write Birthdays, etc. or
I can't remember
*i mention writing down, because you can always look back,
(on previous days if U
need to know.)
I write the date, in "RED
Colored Ink--than my notes in blue or black
colored ink, (it makes it easier to see things.

October 17, 2018
A MyEpilepsyTeam Member

Short and long term memory loss hit me hard when I was around 17. It led to about eight years of mild/moderate depression, and I spent university feeling inconfident, low on self-esteem and struggled to make any new friends like people more often do. It played its part in losing friends because of it too.

From what I can tell on here it could be worse than this though. It's the worst part of my epilepsy, but I'm finding my way around it now.

November 19, 2018

Related content

View All

Edema

A MyEpilepsyTeam Member asked a question 💭
Sioux Falls, SD

Does Anyone Else Have NES/ Dissociative Seizures?

A MyEpilepsyTeam Member asked a question 💭
San Diego, CA

Has Anyone Tried Cefaly?

A MyEpilepsyTeam Member asked a question 💭
Sioux Falls, SD
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in