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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Suffocation And Nocturnal Tonic Clonics

A MyEpilepsyTeam Member asked a question 💭
Burns Lake, BC

I’m wondering if it’s possible to suffocate during a seizure. Last night I had one and my daughter walked in and found me face down, struggling to breathe into my pillow. I never sleep on my stomach so it shocked me when she told me that. I’ve never had a seizure on my stomach either. If she hadn’t turned me over onto my back, do you think it could have happened? Just curious.

January 16, 2018
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A MyEpilepsyTeam Member

I can only say what i have seen myself because im not an expert or anything but when my husband was having a video eeg once we saw that during a seizure his body contorted in such a way that he flipped completely over from his back to his stomach and had the nursing staff not removed his pillows i think he could have suffocated or aspirated but thats just my opinion.

January 17, 2018
A MyEpilepsyTeam Member

My sisters best friend in junior high lost her brother after he had a seizure in his sleep. It was his first and only seizure, I believe.

January 24, 2018
A MyEpilepsyTeam Member

sounds like you made a good choice to go without a pillow. One of my dearest friends was really scared to find out when I was diagnosed because when he was a kid his babysitter had a seizure and suffocated in her pillow. It still breaks his heart to have lost someone he really loved when he was a kid that way. I guess it's pretty unusual, but can happen.

January 20, 2018
A MyEpilepsyTeam Member

I have an specific pillow for epilepsy which is an anti suffocation pillow, I got mine from amazon as they don’t have funding for such things where I live but many places do have funding for them especially considering your last seizure, make sure you speak to your neurologist! Hope you’re feeling ok today

January 17, 2018
A MyEpilepsyTeam Member

Correction: that or you maybe should not seep with a pillow at all. Sorry i know pillows are big factors in epilepsy and suffocation, as well as sleeping on your stomach

January 17, 2018

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