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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been On The Meds Listed Below? Has Anyone Had Many Side Effects?

A MyEpilepsyTeam Member asked a question 💭
Barnsley, UK

So my medication is getting changed because of my liver, I was wondering if anyone had been on any of these? Lacosamide Zonisanude Perampanel Topiranate I want to know what kind of mood changes everyone has had and side effects? One of these is going to be the next one I’m on and I don’t want to choose another one that makes aggressive or anything, thank you in advance!

March 19, 2018
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A MyEpilepsyTeam Member

Zonegran did me bad. I only took it 6 days. Called my doctor and said it would be ok for me stop it since i had not been on it for very long. I think it really made me feel so doped. I couldn't handle that. He changed me to trileptal along with my keppra and lamictal. They all make me so sleepy after i take them. But i guess all seizure medicines do.

March 19, 2018
A MyEpilepsyTeam Member

Topiramate made me really ill. I lost feeling in my left side and foot. Took over a year to fully recover. All because they upped the dose too much. I was also severely depressed. Once off topiramate the depression lifted.

March 19, 2018
A MyEpilepsyTeam Member

I try not to take anything. But find I have too or wake up in hospitals

April 6, 2023
A MyEpilepsyTeam Member

Oh wow thats alot of meds.

April 6, 2023
A MyEpilepsyTeam Member

I've taken Lamictal but that made my heart beat really fast and I had to go to the hospital, Phenobarbital, Vimpat, Topamax,Depakote, Tegretol. I'm now taking Carbamazepine which is also known as Tegretol, I also take Keppra, Onfi, and Xcopri. The Xcopri will make me go to sleep, and make my hands shake, and kinda make me lose my balance. The other medications my body pretty much has gotten used to it.

April 6, 2023 (edited)

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