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Does Anyone Suffer With Agoraphobia?

A MyEpilepsyTeam Member asked a question 💭
Worthing, UK

does epilepsy bring on agoraphobia?
I'm asking because i'm starting to feel nervous about being around people as in crowds and am more comftable on my own in my home. I will go to places I know but only on my own.
I don't go out anymore in the evenings and just do what I need to do in the day and then get home.
I do get panic attacks do I bring it up with my doctor?

March 21, 2018
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A MyEpilepsyTeam Member

Your not alone. I've been in your kind of situation ever since my teenage years. Always wanting to be alone, hate to be in the midst of crowds, and everything similar to what you mentioned. But as for me I feel it's a way in which I won't bother, be bothered, or I'll just stay out of trouble if a seizure comes about. I'm better off in the woods alone, than in a concert having a seizure and having others either worrying, judging or just lost because they don't know about our type of illness.

March 22, 2018
A MyEpilepsyTeam Member

Im from small town. I hate crowds. I avoid crowds at all cost. Fist time I went into a big box store I was overwhelmed and had to leave. Like even the mall had always been too much for me. I'm from 2 lane back roads and get really bothered when we get close to the big city and the highway goes 6 lanes in each side. When ever we move it takes me a good 2 years to get acclimated and I still need a Garmin to get around without getting lost. I love my house. I love my cul-de-sac.

March 21, 2018
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I do a lot of my shopping on line now as well I know i'm going to find and get what I want and need without trolling around the shops around loads of people so I think you could be on to something here.
I never thought of it in this way before but now it's falling into place

March 22, 2018
A MyEpilepsyTeam Member

I was agoraphobic for a couple of years. Most of my most traumatic seizures have happened in stores and I have really bad panic attacks that feel like auras. I could not walk into a grocery store, pick up one thing and pay for it. I would try and it always ended in me going home and crying embarrassed and frustrated. I eventually got where I couldn't drive or function in public. Even going to the doctor was a nightmare. my husband had to make the appointment and hold my hand from the time we left the house until we got home. I started taking antidepressants and valium and just kept pushing myself to get out and do things until I finally broke free. It was exactly like being in prison in my own head. Nobody understood and I hated to have to try and explain it. I have been back in the world for about 6 years now but it's always something I battle with on some level. I still hate driving. I still hate to go to the store alone just in case. I say DEFINITELY bring it up to your doctor before it gets any worse. The worse it gets the harder it is to break free from.

March 22, 2018
A MyEpilepsyTeam Member

I think it's natural to start feeling uneasy in crowds when you have a seizure disorder since you probably worry about having seizures out in public. My husband definitely does anyway.

March 21, 2018

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