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Dilantin Users...

A MyEpilepsyTeam Member asked a question 💭
Sacramento, CA

I was on dilantin for 30 years... until my blood work came back showing my liver affected by the Dilantin. So neuro took me off of Dilantin asap! Since then 10 years Ive been on a roller coaster ride of seizure meds. 2 years no meds. Now seizures came back but with more dejavuu seizures. I am wondering if Dilantin a person can go back on it? Or is Dilantin not so safe anymore??

March 22, 2018
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A MyEpilepsyTeam Member

Each person is different RE: What meds
they can take.
Ask you Doctor, "why," back on the same
medicine. He should explain to you, "his
thoughts."
You can tell him your thoughts. "Maybe,"
you will try different meds, but he can
explain "why!!
I had to go through the same thing before i was set on my present meds..
I tried several other meds also.

March 25, 2018
A MyEpilepsyTeam Member

I keep track of my medicine & i'm aware
when i'm due a re-fill.
I get a 3 month supply of each medicine.
I use my "oldest, dated medicine 1st," &
this allows you to keep medicine fresh
& to keep its strength.

March 24, 2018
A MyEpilepsyTeam Member

Generic medicine is suppose to do the
same thing that regular medicine, only
it's different. Your Doctor should know
all the "positives," & "negatives."
Ask him "WHY," he came up with the
medicine he did.
What medicine helps #1 person, doesn't
do ANYTHING for someone else.
Give the Doctor a written list of the meds
that you take + the vitamins you take.
VITAMINS can interact with medicine.
My Doctor wants me to take Vitamins
#1 hour "different, than my medicine."

March 24, 2018
A MyEpilepsyTeam Member

You might could, I'd talk to my doctor about it. They had to add another sezuire med because my levels got wayyy to high.. so be careful with it. I've took dilatian most of my life. And they do keep a check on my liver. Geneic Dilatian doesn't work for me. I think there's a missing ingredient..that regular dilatan has I don't know. I just know it doesn't work for me. I keep having sezuires still.

March 23, 2018
A MyEpilepsyTeam Member

Generic Dilantin is Phenytoin. Generic is also cheaper in price. I use it because insurance wants me 2 use it because it costs less in $$.

March 23, 2018

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