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Having Side Effects Getting Off Keppra

A MyEpilepsyTeam Member asked a question 💭
College Station, TX

I’m weaning off keppra and feel horrible. Keep having jerks at night. Hard to sleep or I sleep too much. Sucks. I was on 1500 twice a day so It is better. I’m down to 500 twice a day. My dr tells me to stay on dose another week or two and try to go to 500 and 250. Staying on vimpat 150 twice a day.

May 12, 2018 (edited)
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A MyEpilepsyTeam Member

I was on Keppra back when I was still in school. It did NOT do well for me at all. When they switched me over to Lamictal, I was a bit cautious, but ever since, it's been 200 mg of Lamictal a day and I only ever have a seizure when I forget to take it. When you talk to your doctor, speak up! Don't stay quiet. Tell them your ideas, suggestions, and let them tell you why you should be on Keppra and not Lamictal or any other med. Communication between doctor and patient is construction of a seizure-less future.

May 13, 2018
A MyEpilepsyTeam Member

How have you found Vimpat since coming off Keppra ? It’s being suggested to me in very small amounts to add to Lamotrigine

May 14, 2018
A MyEpilepsyTeam Member

They just put me on Keppra, this is the first drug they have tried since diagnoses, I'm just wondering why are they taking you off Keppra? I'm on 2000 mg a day

May 13, 2018
A MyEpilepsyTeam Member

I get jerks every once in a while but usually from loss of sleep or exhaustion. Could be your body is having withdraws of the medicine. Keppra is a very strong medication, so it maybe a shock to your system with the big change. Be careful. I would right down the times and dates of when they happen and show the doctor.

May 12, 2018

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