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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Losing Feeling In Your Legs.

A MyEpilepsyTeam Member asked a question 💭
Holyoke, MA

I’ve have been losing feeling in my legs at least 1 day a week on days I go in to work. I work at 5am. My legs just go numb and they go side to side like someone who is paralized. I have to catch myself before I fall. It doesn’t last that long. It’s pretty scary. I never admit anything scares me. I’m trying to be more open in my life. I’ve never been open about my epilepsy. I feel I’m getting worse. It just started happening a few weeks ago. Does this happen to anyone else?

May 26, 2018
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A MyEpilepsyTeam Member

I’m not sure what medicine you might be taking but I just started taking Lamictal & my doctor warned me off the side effects. One of them she mentioned was numbness & tingling in the hands or legs. I also recommend seeing a chiropractor, I see one every 3 weeks to adjust my neck to help with my headaches.

May 27, 2018
A MyEpilepsyTeam Member

Have you discussed it with your Dr? I lost feeling in my right calf for several months. It turned out it was caused by a nerve that go pinched in my SI joint. Chiropractor fixed me up with one lower back adjustment. In my case I also have EDS so I often get pinched nerves due to joint over extension.

May 26, 2018
A MyEpilepsyTeam Member
January 21
A MyEpilepsyTeam Member

Breen, I see you asked this question a few years ago but I just saw it! Hopefully you’ve found a solution! If not, a question: are you taking Dilantin (phenytoin)? I am and this used to happen to me every once in a while, and it would take a couple of hours until I could walk straight again! We discovered my phenytoin level was 22 (supposed to be 10-20). This is one of the side effects of too much of it in your body, the numbness/weakness/falling. Find out what your level is at… your neuro may change your dosage.

June 19, 2023
A MyEpilepsyTeam Member

I go see him on the june 1st. I’ll find out what he says. Thanks.

May 26, 2018

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