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Surgery

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

How do you know when the time has come to have surgery? is it when no other medication works and your seizures are uncontrollable?

May 3, 2019
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A MyEpilepsyTeam Member

As soon as my neurologist offered surgery as a possibility, I said, "sign me up for it". But it isn't that simple. You have to be a good candidate for it. It depends on the type of epilepsy you have, and the part of the brain you're seizures are coming from. And, most important, you're still having seizures despite taking medication. I qualified because my seizures were caused by scar tissue on my right temporal lobe, and I'm right handed, which means that my speech and memory are on the left side of my brain. They run several tests, including a video eeg, where they take you off medication, and keep you in the hospital to see where your seizures are originating from The Wada test checks for memory on both sides of the brain.My surgery took over 7 hours, and I've had an excellent outcome, only 2 seizures while being pregnant and not taking medication. I'm on a very low dose of Lyrica, 125 mg, since 2008. I highly recommend surgery, if your doctors tell you that you will see an improvement of at least a 50%. Keep us posted.

May 5, 2019
A MyEpilepsyTeam Member

I hope u can find a solution to y no meds are working for you with your epilepsy condition it isn't easy I know but surgery might be your only option I would get second option from a different doctor good luck

May 3, 2019
A MyEpilepsyTeam Member

If you talking about the Brain surgery, they will slowly reduce your meds every day. They are trying to get a big seizure to act out.

For myself , When I was totally off my meds. My was seizing , still weren’t strong enough. My Epileptologist finally can to me and asked if there was something that I would like to eat or drink , that I wouldnt have on a normal basis and can cause me to seizure.

Well I thought about Whisky ,but I was also craving regular Dr. Pepper ( I discovered that regular pop triggers my seizures ) , If the pop isn’t diet , it can make me have seizures. I finally decided to have regular DP to drink . I had finished one can and started on my second. I had a few more drinks and then my body went into convulsions there were 5or 6 doctors and nurses surrounding me. .

After that giant seizure, they got what they were waiting for and next day I was off to have my brain surgery.

May 4, 2019 (edited)
A MyEpilepsyTeam Member

It was time for me to have surgery/test after every eeg never could not find any real information that epilepsy & seizures existed inside me and the depth electrode test was possible.

May 3, 2019
A MyEpilepsyTeam Member

i had surgery but it was a LAST RESORTS. drs said surgery as a first resort. in the 90s there were a lot of 'experimental treatments' we did try like hyperbaric oxygen and the keto diet. and right after surgery they came out with all the new toys like the vns and laser surgery and just recently cbd oil.

May 3, 2019

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