@A MyEpilepsyTeam Member Im allergic to Lamictal. That crap gave me the "steven johnson syndrome" and burned all my skin off. I do know that CBD totally works. Weed period works for me and im not a weed smoker. Its just these doctors dont recommend it and i dont understand why??

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A MyEpile...

Thanks for the advce well i had just actually started a few itcwasnt helping so yes i told my doctor i stopped hoping this next doctor can help

@A MyEpilepsyTeam Member my worst side effect was dilantin and depakote. they made me go from 1 seizure a hour or so to clusters of seizures a couple of minutes apart. i went to the er. tell me do you know of alternative meds? mostly the keto diet and cbd oil? research it because keto went from 1 a hour to a couple per day. and the cbd oil went from a couple a day to seizure free.

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A MyEpile...

Only time I was fully taking off my meds, was during a 7 day EEG

Totally in the same boat. I stopped taking meds cause of the side effects and I was totally allergic to it all. Gotten to the point where they say the only thing thats gotta work it surgary.