It’s great to hear from you all of you . Reading your stories, experiences, and whether or not you have you talked about it at all.

We all should talk about Epilepsy every now and then. There is such big Stigma surrounding it . The average people out there don’t know a thing about it. What they think they know are the myths about it. We need to get the world to understand it better.

We shouldn’t have to fear or hide in a shell and not talk to others about it. If they don’t seem interested, that’s ok. If they are , it’s a whole different feeling. Kinda like your getting rid of some weight that’s been on you forever .

Don’t think of your Epilepsy as a disease or handicapped. There are many people out there who have one of the many Cancers , Diabetics, Autism, and many more. They all have a struggle one way or another too. Doesn’t meant they can’t live a good healthy life. Beside the ones who know us or see us seizure, we all look like a normal person going about our day.
Like @A MyEpilepsyTeam Member said we control our life not Epilepsy.

Mentioned Users

A MyEpile...

You have epilepsy, epilepsy does not have you. Talk about it. Let everyone know you can go on even with epilepsy.

I share my epilepsy with anyone that cares to ask questions... When having a bad day and I am noticed whilst waiting at a bus stop or going through hypertension, I will stutter and speak slowly during the partial seizure, but know that my epilepsy WON'T have me! I have fought this for 45 years and will always support those who have it; some worse than me!

I am Admin to many epilepsy groups on Facebook and it's great to see the interaction between members in the groups... Spreading awareness is so important... Never think that you are handicapped!

My mother in law asked me (out of the blue) about my health, my epilepsy, lupus, etc., and asked what to do if I have a seizure, no one ever asked me that, I replied that all the meds I take usually keep the big gran mal seizures away, but if I ever do have one, make sure I am laying on my side, in a place where I can’t hurt myself, time my seizure, do not put anything in my mouth, but please talk to me calmly until I come out of it. If its over 5 minutes call ambulance to check me over, if not, get me home to bed, as I will be very tired.

Did I miss anything?? Knowing my family, they will take me to the hospital whether the seizure is 5 minutes or not...

@KimRobThat

It’s sad when you don’t have a family to support your disorder nor try understanding Epilepsy.

We may have memory issues, but when Our families reach old age they too can have memory issues too. They will forget things like we do. Payback sucks.

It’s a good feeling when a friend, family and relatives ask for info about Epilepsy. I achieved to give info out to somebody who is interested in understanding.