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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Think For People That Aren’t Epileptic Like All Of Us In This Group Have A Hard Time Understanding What We Actually Go Through When A

A MyEpilepsyTeam Member asked a question 💭
Hayes, VA

Seizure hits us. I’m the only one in my family that has to deal with this disease.

September 22
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A MyEpilepsyTeam Member

That is true. Its hard to understand what they haven't passed through

September 28
A MyEpilepsyTeam Member

I totally agree

September 23
A MyEpilepsyTeam Member

Exactly we look normal act normal but when it hits no one understand it takes a couple days to get back to normal

September 23
A MyEpilepsyTeam Member

Noone will ever be able to understand epilepsy and the myriad of effects in all its forms (physically, psychologically, mentally, socially) that epileptics go through unless they have it. When they spout their opinions and tell me what I'm "actually" experiencing and why my life is the way it is, I must remind myself to remain civil, especially among family but lately that's been hard to do.

September 22
A MyEpilepsyTeam Member

Opinions are like assholes everyone has one and they all stink. People can have a understanding of the disorder, have sympathy for you, but no one will ever be able to truly get what you go through and the feel what your body goes through. I became epileptic in 2005 after a TBI I received in a motor vehicle accident.

September 22

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