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Can Others Who Do Not Have Epilepsy Really Help And Understand?
I was diagnosed with epilepsy in 2012. My seizures are complex partial seizures. Complex partial seizures seem to affect your emotions, reactions and focus. The medication, along with a good neurologist has helped me a lot. My seizures are under control now. I say now because seizures never seem to be under control for the long term. Medication has to be changed, increased, etc. It is frustrating. All of my life, I have had a hard time making friends and have felt awkward socially. I think… read more
In my opinion based upon 38 years of epileptic seizures (focalized and refractory).. Partly.
Help is well meant. But sometimes too much too soon isn't great. I find people who don't have epilepsy think tv drama version and panic! Thus overreact.
This goes for doctors as well.
No, my Dad who has known me since birth...still doesn't get it. He had a fall due to light headedness last year..he decided he knows how it must feel for me when I fall. Uhm, no Dad. I have to plan my whole life out according to complete unknowns since I don't get auras. He plans his life around meals and computer deadlines.
Give a thumbs up if you have to explain over and over and over again..no that's not how my seizures work! This is ______!
Most people see seizures as an outward action. It's not. It's the interior fighting with itself, the outside is the created end result.
So, No is the short answer. Understanding seizures is having them yourself.
@A MyEpilepsyTeam Member, I know what your talking about. Almost every day, I have a song stuck in my head right now . It a novelty song and it’s also on a sound track, for a movie. It’s called “ CAUSE I’M A BLONDE “ .
LOL!
Actually, the whole discussion about who makes the decision on what is "normal" for a brain or anything else for that matter, was a discussion in Sociology 101 class. However, the history is an important lesson too. And yes, I can do the same with my "abnormal" epileptic brain.
May the Lord cnontinue to watch over you my friend, and though the cross we all bear is strong., we never really die, its just time to come home. ♥️🤗
Rehab studies always told me to get a job where you do the same thing over and over. I’ve been sacking groceries for 20 years and everything has worked out for me. Businesses aren’t allowed to fire anyone for having a mental disorder.
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