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Please Share Your Experience With Going To An Epilepsy Monitoring Unit

A MyEpilepsyTeam Member asked a question 💭
Bozeman, MT

My husband is being admitted to the epilepsy monitoring unit at Mayo rochester tomorrow. I am wondering what to expect.

August 11, 2019
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A MyEpilepsyTeam Member

I was admitted in the emu back in January for one week. My Epileptologist weaned me off my meds and within a day they broke through. The nurses were always on top of everything with monitoring. Made sure the Dr was aware when they broke through. He did thorough readings. He found majority of my seizures were not epileptic, they were stress induced, pseudo. How He knew that was because in the readings there were no spikes showing up in the brain waves, they were normal. He also ran cat scan.
Afterwards he switched my medications to ones that were highly effective and a big decrease in dosage. I went from taking 1800mgs per day to 400mg per day.
I'm now six months seizure free. Just saw him on Friday and he just gave me the ok to go for my permit which I've been practicing for.
Going to the emu really helped me make a big turn around. When he informed me the stress was the cause I straightened my act out, not letting little things get to me. Good luck!!

August 11, 2019
A MyEpilepsyTeam Member

my meds were decreased so my seizures would act up, there is always someone watching the video monitor to warn the nurses when the seiz happen so they can see them and take notes of them. there was an alarm that would go off and 5 nurses came in at the same time. once they get the info they want they will increase the meds to calm the seiz down.

August 11, 2019
A MyEpilepsyTeam Member

I went to hospital for two weeks hopeing to find whats and where sz are coming from, had a Monitor on me with all wires on my head and a camara on me 24-7, they slowly took my medicine off me,but never had a sz the hole time there, so then my Dr slowly put me back on Medicne and one day over took so back in hospital for 3 days then got out and my dr lower dosoage and never had a sz again and now 23 yrs sz free and retired from GM after 30 yrs and enjoying life as never had Epilepsy and I give god the praise for it all

August 11, 2019
A MyEpilepsyTeam Member

My insurance covered mine. It is one of the ways they found that I was born with a rare HH tumor that causes my seizures

August 14, 2019
A MyEpilepsyTeam Member

Good luck!

August 13, 2019

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