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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Ever Taken Onfi?

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

If so, Im not gonna be addicted to anything, am I?

September 17, 2019
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A MyEpilepsyTeam Member

I think what you are asking is if you will be addicted to the med Onfi right? Well I wouldn't way addicted....but you definitely can't just stop taking it or skip doses. If you are to go off of it you need to be weaned off slowly. My son took it for a short time and the exhaustion was too much for him so he was weaned off and put on something else.

September 19, 2019
A MyEpilepsyTeam Member

I agree Janet because I have to take my Keppra at the same time everyday as there is a time limit to how long it can take effect. Yes regular blood tests help guide your times and levels so your GP and neurologist can increase or decrease meds.

September 17, 2019
A MyEpilepsyTeam Member

I don’t know about the medicine you are talking about . But in a sense yes and no , yes because while you have seizures and you take your medicine on a daily basis your body will depend on the medicine to keep the seizures from coming, that why you take them at the same time to keep the level of the medicine equal. No it pain medicine you hear about, but some of seizures medicine is, the doctors check your blood to keep it right on

September 17, 2019
A MyEpilepsyTeam Member

Onfi made my son EXTREMELY tired. Your body might have withdrawal side-effects if you miss a dose I am guessing.

September 25, 2019
A MyEpilepsyTeam Member

I cant find it on the list either. Im suppose to take it before i go to sleep. If i dont, id be high and stuff my neurologist said. Has anyone been high off of it?

September 24, 2019

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