Are They Working On Cures For Us????
It Just Seems Like Where Im From, These Docs Can Really Careless About Epilepsy. They're Coming Out With Cures For Everything Else, But Havent Found Any Cures For Our Constant And Multiple Seizures. Then On Top Of That, These Meds Really Suck To The Point Where The Side Affects Either Make Us Have More Seizures Or Try To Kill Us. Its Beyond Frustrating. I Know I Am!!
For me no medications worked so I went to see a specialist in Florida at Tampa general hospital and had brain surgery only thing that help me completely free now no medications
I know what you mean I almost passed when the doctor gave me to much mg of vampact I had to go back on my tegrotal I than made a journal every time I have a seizure what was I doing before seizure and what did I eat how was I feeling was I in stress at the time did I get a lot of rest,oh I know that is a lot of work but I always say the more you know about yourself the more you can explain to others in conference and not fear maybe when the people who is around sees you not afread they won't either, I hope 😉🥰
I hear you Syd, Ive gone through 10 meds Im now on 3 meds, for all the psychiatric effects of meds & seizures... resenting everyone & everything, turning into an irritated depressed prick.... its a stunning... 30% improvement.. *slow clap.. It's a broad bucket epilepsy though & maybe they'll get more specific meds in the future.
I feel the same way.
Here is where to read to find out about research related to Epilepsy currently happening in the USA https://www.ninds.nih.gov/Current-Research/Focu...
Has Anyone Noticed A Change In The Frequency That Your Seizures Occur When Taking B12 Or D?
Has Anyone Have Experience With Getting Workplace Accomodations To Work From Home To Manage Their Seizures And Epilepsy?
University Of NM