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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone A Recent VNS Recipient Who’d Be Willing To Talk To Me About It

A MyEpilepsyTeam Member asked a question 💭
Buffalo, NY

My partner has severe, medication unresponsive epilepsy. Our neuro has been pushing for a VNS and we have an appointment with the surgeon to discuss. Just wondering what people’s experiences with VNS’s has been…

August 30, 2021
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A MyEpilepsyTeam Member

@ that I have experienced are trouble swallowing and being SUPER emotional!!! I think that the pros outweigh the cons.

September 1, 2021
A MyEpilepsyTeam Member

I have had the VNS implanted, as I have been diagnosed with intractable epilepsy. There are pros and cons to the device. It hasn't rid me of seizures completely, but it has made them shorter. (Big improvement!)

August 31, 2021
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A MyEpilepsyTeam Member

Well put Kirsten. The pros definitely outweigh the cons.

January 5
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member what are some of the cons, in your opinion?

August 31, 2021
A MyEpilepsyTeam Member

I realize the dr always tell the benefit but don’t tell u us the side effects. My neurologist has telling for 2 years but my family doesn’t want me to take a huge chance put a device in my body. I’m just telling u what I feel about vns. I feel vns is for those people who has uncontrollable seizures.

August 31, 2021
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