@A MyEpilepsyTeam Member - of course we change when we have epilepsy, but we also change just as we go through life. My husband does not have epilepsy, but boy has he changed over the 25 years we've been married. I think it's our natural evolution, with just one more difficult variable thrown in. Being able to live with the changes of your loved one is a different issue, and one of the main challenges of marriage.

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A MyEpile...

Hi Hazelwind, I have tried to read your message & I have read your husband has epilepsy & u have cancer & stroke. As for me, I have epilepsy & have had a stroke down my right side which has left me visually impaired. As for my husband, he had lung cancer & asbestos as he was in the Royal Australian Navy. He tried heaps of chemo etc but a good 5+ yrs ago, he went to a better place, much better than our world is now, thanks to covid19!
Slow down & take care of each other, & when you feel like getting upset with your husband & he feels like getting upset with you, come onto myepilepsyteam, & talk it out with your friends from around the world!!

When I first moved in with the wife and had my first seizure with her she saw how confused I could be after and unable to answer questions and so forth. So the day after we both sat down and spoke about what happened and I told her the same as I used to do with my sister when I lived at home (my sister is a health care support worker so she was brilliant when ever I had a seizure), wait til the seizure finishes let me sleep just for about 10 minutes and slowly wake me up, not to ask any questions that I had to answer and wait for me to speak. This way I find I recover quicker and we both understand what we need to do when anything happens. But there needs to be some understanding between both of us especially if I'm having a bad day because of the medications.

Thank you for all of your replies .It's our Ruby wedding next year and he's very supportive in lots of ways .I guess I should focus more on the positives. (He only gets frustrated at times .)

Yes. I'm in the same boat. He's there at times. But just doesn't understand how I feel. I try to tell him. But I just feel like he doesn't want to listen. When I came home from a Dr appointment. He ask how it went. But I know he's not listening. One day we went bike riding. I haven't road a bike in yrs. It's like I forgot. And he was yelling at me like I was a child. He does that alot. I tell him I'm not a child. With having seizures. You forget alot of things. I can feel at times he doesn't want to deal with it anymore. We been together for 16 yrs. I stated having them at 2014. And he's always telling me that I have changed. I'm not the same person I was. The only thing I can say. Is I don't think or planned on getting sick. Hope things get better for you