I have memory loss. I forget how to do certain daily tasks. I forget people's names. I have to ask my kids when their birthdays are. It has impacted my life dramatically, and it is scary. I can be mid sentence, and I forget what I was trying to say. My words have even started to become incorrect either backward or just jumbled. It takes me a long time to come around from a seizure and seems to be getting worse. I know how you feel and how hard it is, and I wish you all the best.

@A MyEpilepsyTeam Member, I completely understand the words thing and it drives me insane. My wife has gotten unbelievable at somehow knowing what words that I mean when I can't remember one or just use something like "thingy" one of my new favs. And yes the jumbled letters is just so weird. That one is fairly new for me. My other latest one is using words and then thinking "does that word really even exist or is it something that I just made up from another word?" That usually happens with those more unusual words that we don't tend to use as much. My wife and I were over at her parent's house the other day and I felt like I was constantly slowing my sentences up to find the right word or doing that thing where I'm not sure the word is even real or not. I said something to my wife later and she promised that she didn't notice any of it.

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A MyEpile...

@A MyEpilepsyTeam Member, yeah Jack I've had them talk about the meds and things such as that but then they'll turn right back around and act like it's a surprise that I'm having any loss. I have zero, see just forgot the word I was looking for in 3-4 seconds lol, CONFIDNENCE in any of the neuros here in Indy. It's being monopolized by one major player and one of the larger hospital systems, other than those two we have no one else.
One of my favorite things is the jokes that they call memory test. My last one was three hours long and then they turned out and said that it's all normal. I'm like "uh if this is NORMAL than I feel sorry for the rest of the people in this country." He then admits that "well it does usually take several times before you retain it. Uh several? Yeah we found that it has to be repeated to you three times. Now I know that doesn't really help in the real world because you can't go around asking people to repeat everything three times.
Thanks doc I would have never realized this, and how much is my insurance company paying for this shit? I make a joke about the 3 times and then just say screw it like usual.

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A MyEpile...

So does my husband! I am useless at remembering questions and answers. If I don't write everything down before and immediately after, I don't remember. And it's hard to write answers while you're also trying to listen. Luckily my neurologist summarizes the visits on their portal, and that my husband comes to the important ones.

@MarlieeGramith, I've always thought something that when you say it almost sound like a one line joke "I don't know how bad my memory has really gotten because I can't remember how it was before?"
But actually some of my biggest clues have been with TV and movies. I watch more TV with my wife over the last 10 years than I ever have and one thing that she knows is to never pick out anything with too many players because I'll never keep them straight. This gets even worse when Hollywood has certain kinds of looks that seem to be in at that point in time, so they'll get a ton of actors that look too much alike and WOW does that mess me up.
With movies now it's almost a total loss because they'll be completely gone within a year. Heck some of the time I don't even remember that we watched it. Now a lot of my memory before my grands seems to be locked up, at least for now, but everything since is a total wreck.