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Memory

A MyEpilepsyTeam Member asked a question 💭
El Paso, TX

Can you lose your memory with seizures?

January 21, 2016
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A MyEpilepsyTeam Member

Carry a notebook, and always write things down you need to remember, that's what I do.

March 8, 2016
A MyEpilepsyTeam Member

Every time I've had a gran-mal seizure, it's been like starting over. Lost time, more difficulty keeping track....,. For years, I refused to take Clonazepam, as, up until 10 and half years ago, I'd given up. I was a heroin-addict. I expected to die, but, despite everything, I didn't. Things just got worse and worse. I'm 6'5" and, back then, weighed about 185lbs., Now, I'm very careful about my medication, and am 205lbs., bench 285-305, and have even the long road that is giving up cigarettes. My memory is terrible, due to the massive amounts of scarring on my brain, from my initial injury violence, to falls during seizures, and more violence. Years ago, I returned to the Church where I still attend, and have found a kind of spiritual guidance I've needed my entire life. Now, I've been several years without a gran-mal seizure. The meds have kept those in check. Unfortunately, being on high doses of five medications doesn't make my memory much better. They do help. "Mood stabilizers", is what virtually all are called- tranquilizers, essentially. I drink less caffeine, exercise, but, I'm still in a place where I need to be careful of men who will condescend, even talk to me as though I were less than them intellectually. My kids are the most important people in my life, and I can't lose what time I have with them. It's a hard thing, starting over. If it weren't for the mistakes of my past, which led to my epilepsy, the humiliation, I wouldn't have my two Sons. I needed to be humbled. God's will.

February 20, 2018
A MyEpilepsyTeam Member

Any game/challenge (trivia event) that you can find to force the brain to work hard to recall is a major plus for memory.

November 3, 2016
A MyEpilepsyTeam Member

@PatriciaLivenwood If you have a good neurologist, then you can talk about this and get professional feedback on it.

Go on the links below and learn from the experts and talk with your neurologist/epileptologist about what you can do to help with your memory troubles. There are some things that you can do, but a lot of the issues are just a painful reality of Epilepsy.

Memory issues are a reality of Epilepsy (even when not currently having a seizure) with Memory Recall being the most affected because Epilepsy is a natural hinderance to Memory Recall and all anticonvulsants and some of other medications add (cumulative addition) to Memory Recall. There are also various factors of Epilepsy that hamper short term memory (especially stress) and long term memory access, some of which gets worse by the more years that you have Epilepsy --even when in a long term seizure free state.

NOTE: It is just like with Diabetes II, damage is done over time (slowed if you can keep A1C and daily numbers down) to first lead to the need to switch for medications to insulin and later greater kidney damage that can eventually lead to the need for dialysis or even a kidney transplant based on how well you control it when you are younger and how long you live.

Here is the US National Library of Medicine Memory page
https://medlineplus.gov/memory.html

How Epilepsy can affect Memory (Epilepsy Society of Great Britain)
https://epilepsysociety.org.uk/living-epilepsy/...

Epilepsy and Memory (Epilepsy Foundation)
https://www.epilepsy.com/learn/challenges-epile...

January 31, 2022
A MyEpilepsyTeam Member

People do not understand so just take it with a grain of salt

January 22, 2016

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