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Recovery Expectations From Frontal Temporal Lobectomy

A MyEpilepsyTeam Member asked a question 💭
Yankton, SD

Hi, I am going to have a frontal temporal lobectomy on my non dominant side, next month, i have no idea what to expect afterward except for the generic stuff that the doctors have told me. I am curious about memory, mood swings, depression risks, thought process, Etc. I have never talked with anybody who has had anything like this done. Those of you have experienced it, Can you give me any information?

April 2, 2023 (edited)
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A MyEpilepsyTeam Member

I've had my left amygdala and hippocampus removed. My memory improved after the procedure minus remembering names. Without the procedure, I probably wouldn't have been able to go to law school or pass the bar exam. I don't think my thought process was necessarily affected.

In terms or mood swings/ depression, I think its fair game to ask your doctor, what they believe the big picture result of your procedure would be. I.e. will this stop my seizures or will the surgery just lessen the severity and or frequency of my seizures. In my opinion, knowing that ahead of time will get you mentally ready after the surgery of what life will be like post operation and give you realistic expectations. For me, the procedure was done to lessen the severity of my seizures, it was never the cure all.

In terms of physical affects, people wouldn't be able to notice I even had surgery. Also, I have been fortunate to not have any infections and or long term pain from the operation.

Good luck! Hopefully the procedure exceeds your expectations.

April 2, 2023
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A MyEpilepsyTeam Member

Make sure You’re placed in the Neuro-ICU after the surgery for recovery ❤️‍🩹

April 2, 2023
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A MyEpilepsyTeam Member

I didn’t have my Frontal lobe removed, but I did get my left temporal lobe partially trimmed away.

The surgery didn’t make me seizure free, but it it did help reduce my seizure frequency from sever to mild and moderate seizures.

Now because your frontal lobe is being worked on , I don’t know what symptoms to expect. You might be seizure free temporarily, but they can come back when your brain fully heals.

It took 6 to 8 weeks to heal when I could safely move around, but took a little longer to get 100% healed

April 2, 2023 (edited)
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A MyEpilepsyTeam Member

I found it best to go in with 0 expectation. My first surgery I was prepared to not come out of the surgery better. That was until the night before after having a seizure my wife said "You know, this could be the last time you ever have a seizure." For some reason I went from prepared to unrealistically expecting 100% success.
2 days after my first surgery. I had not had a seizure. The hope grew and when I started having seizures again I was emotionally wrecked. Depressed and defeated. But I kept fighting and working with my doctors for what is next.
1 year later I was back under the knife. This time I was prepared for a unsuccessful surgery. If you look back over my profile. I talked about being seizure free for a week, 2weeks,6 weeks. I literally took it day by day, moment by moment cherishing every seizure free day.
The success rate on surgery is reasonably high. But you must be mentally and emotionally prepared that its not going to be easy or down right unsuccessful. It was the most emotionally taxing experience of my life and I cant thank Myself, my wife, and this community enough for being there for me when I needed it.
Lean on us friend. Keep fighting no matter what.

April 14, 2023
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A MyEpilepsyTeam Member

Thank you so much!!!

April 16, 2023

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